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Looking for clubs or social events for 11-year-old
Writing on behalf of my wee granddaughter Elise who has a genetic brain disorder called polimycragiro she has no speach incontinent swollening difficultes week muscle tone n epilepsy because she dosnt fit under any umbrella she has no clubs or social events that she can attend I know you are down south but was wondering if…
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Info on teaching methods/S&L therapists?
Hi My youngest (5) has just been diagnosed with moderate ASD and we are expecting an ADHD diagnosis. The diagnosis was made through the NHS via my GP's referral which happened before she had even started school-so has taken approximately 2 years. It's great having the ASD diagnosis, in so much as I hopefully have a better…
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I am look for more support as my son was born with a heart problem
Hello eveyone just wanting to know if their is anyone else out their that is a perant or care that looks after someone with a heart problem i am look for more support as my son was born with a heart problem and now found out he has a problem with his eye site he is on a special diet for it and i am still confused and…
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I need advice please
I wonder why my 9 years old son cant compose a sentence both talking and writting but he is a good reader when he was 5 years old he knows already how to read but the way he text and takl just word ford only he cant compose exact sentence..
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Caring for an adult daughter with MH problems
Hello, my name is Anne and it’s my first time on this site. I am 66 and live with daughter aged 29 . She has been diagnosed with bi- polar, borderline personality disorder and ptsd. She also has physical health problems with asthma being the most problematic. I have chronic arthritis in both knees and left hip . I had my…
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Footwear for splints
Hi all I am looking for some advice/experience. My 2 year old daughter with PVL and diplegic CP has recently been given splints to try. We are very keen to try them HOWEVER are really struggling with finding suitable footwear that the splints actually fit in! We have tried lots of different styles and sizes but none…
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Appointments
Hi I need some advice. Daughter has Mitochondrial disease which presents that she can’t walk and has maybe mild learning difficulties. Split with wife in July and almost divorced. However despite attending every medical appointment since birth (and there’s been a lot) I’ve not been able to since the split as relations are…
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Difficult times
I'm a disabled mum of 3 autistic children . Finding everything to much to bear. No services for my daughter to support what I'm going through Suffolk support is ridiculous.
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Teenage Daughter with Autism and a mum with Fibromyalgia
Hi everyone I hope you are all well, I’m new to the group and am hoping to find advice and gain knowledge by reading some of your posts. I have a beautiful girl who’s 15 and really struggling with herself and school, while I am currently struggling to deal with my pain every day having Fibromyalgia. I also have two boys…
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How can I check he is being charged correctly?
:) Hello everyone, thought I would join the forum to gain more information due to me being carer to an Autistic son, and also give help with any issues that I have come across that may help other carers.
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Down Syndrome
Hi all I have a 26 yr old daughter with down Syndrome mosaic.Are there any members on here with a child with the same diagnosis.
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Childcare, Babysitter - who do you have to cover for you if you need it, and how did you find them?
Hello everyone,I am Mum to twins who both have disabilities. In my view they are fairly mild: both can speak and are bright, one of them can walk unaided, but they are less independent than their peers and have personal care needs, and maybe a heightened sensibility as to what they might need. They are 8 years now, and…
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Help son with reflux but i think more
My son was diagnosed with reglux at 6 weeks, at 4 months started being ng fed, at 1 year had a fundo and a peg fitted. Hes now 17 months hes still on all reflux meds, still wont eat. Has black poos regularly is uncomfortable all tge time, drinks bottles of juice like its going out of fashion this is the onky thing he…
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Carers help
Hi everyone, I am the mum of a 34 year old man, who is wheelchair bound because of cerebral palsy, and has suffered severe mental health problems, I am 71 years of age. My son is entitled to a direct payment, and for the last seven years he has been using it to take him to and from the gym, and to get out and about, this…
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DLA claim - 4 year old with CP.
I have tried to apply for DLA for my 4 year old who has cerebral palsy, it has been declined, I have appealed the decision, and have been waiting for a date for the tribunal. I’ve finally got the date and it’s coming up very soon. What should I expect? What kind of evidence could really help that I could of forgotten? I…
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Struggling to make friends at new high school
Hi, my son is 11 and started high school in September. He hasTourettes, non-epileptic seizures, anxiety and possible ASD. I am worried as we are nearly at the end of the 1st half term and he has not really made any friends. He was so sociable and had lots of friends at primary school and played football outside every lunch…
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1yr old with mild cp?
Hi, I'm after some advice really. My daughter is one year old, we noticed when she was about four/five months old the she didn't really use her left hand and that it was often fisted. This became more apparent as she started baby led weaning. We also noticed her left foot was often clenched, she also suffers a lot from…
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Emotional support
Hi My daughter who is 9 has a progressive muscle disorder which requires her to use a wheelchair and wear AFOs day and night - still undiagnosed after 6 years of tests. She is suffering emotionally and is really down, she is expressing self hatred a lot and has secluded herself from her friends at school and is usually by…
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Rett Syndrome
Just wondering if there are any parents caring for a child with Rett Syndrome?
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Deputyship
hello, just starting to look into deputyship for child coming up for 15yrs age, like to plan ahead as everything takes so long and she will not have mental capacity. Do we involve child social services or just get on with it, looks like £365 initial payment then yearly fee and parent does annual report justifying actions…
