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I'm not sure about my 11 yr old. Advice
Else
Member Posts: 3 Listener
Hi everyone,
I have a sweet & almost 12 yr old girl who has had social issues since forever.
I'm not sure if she may be mild autistic or her social issues are due to severe shyness/extreme caution of people so those skills didn't develop as well due to avoidance.
Since a baby I noticed she would be physically uncomfortable if people looked at or spoke to her. She is still the same now but not with mum, dad and a few of her closest friends where she is quite comfortable. With the majority of people she comes in contact with, she isn't comfortable with socially and describes herself as awkward, finds socializing awkward and difficult. She went to toddler group, nursery at 2, started school at 4 but before she was 6 she never interacted with the kids and had poor social skills already, yet begun taking at 11 months old but other then with certain people, didn't know how to socialize it. Just watched kids mostly. She made a friend in yr1 but only because they came to her. She has a few friends since through school but again, they came to her. She cannot start conversations at all. She would never go up to someone and start talking.Never had friends out of school so on holiday, or half term clubs would sit alone watching kids play as wouldn't go up to them, she hoped they would go up to her. She can be very chatty at home or with few close friends. But at school and since nursery, she is pretty mute. You wouldn't know she was there. Yet at home she can talk about an interest non stop for 2 hours given the chance. She hates people staring at her. It bothers her a lot. Has a noise intolerance. School is hard for this but she don't want to attract attention much so don't tell teachers often unless really bad the noise, most time she puts up with it reluctantly, but they never pay much concern to it. She is funny with clothes too, pretty much wears the same clothes and type. She lives in one hoody currently. Even on hot days I'm struggling to get her in a t shirt. Anyway, my concern is she has social anxiety now last 2 years. She gets very anxious at school, especially with the teachers, the loud class room, unruly kids. I did speak to them to ask of they would keep an eye on her this coming sept, she be in yr8 then. She don't have much facial expressions unless at home or with close friends and this has caused her a lot of misunderstandings in schools etc as she looks sad, depressed or has an attitude. I've tried to give her tips on to smile and conversation starters but she still finds it hard. She is refusing support/therapy as she is uncomfortable talking to people anyway and gets anxiety. I bought her a book on social anxiety for teens but she says it's boring (without even reading it lol) so refuses it and when I try and support her she resists. She finds it hard to talk about her emotions and feelings so it frustrates her. She is happy when at home. But just anxious outside of it especially in school. I have suggest over years after school clubs to help her social skills but she refuses. She has plenty of online friends though.
Sorry this is long. I just don't know what to do as she struggles so much in most social situations but I don't know how to go about it without distressing her. She would get very very anxious having to talk to a stranger or even teacher. She is very uncomfortable with most people and prefers to talk very little if they are around. It's like trying to get blood out a stone unless she is talking to selected special people so not sure how they could even help her.
I must add. My brother was diagnosed with mild a few years ago in his mid 30s and my dad believes he is mild too. I got my daughter to do an online test of 30 questions. Results was 34 and over for autism and she only got in at 36..so I'm on the fence but I know it's online test so not certain. She can read facial expressions well. Just don't give them often herself around most people. She is a good people observer.
I have a sweet & almost 12 yr old girl who has had social issues since forever.
I'm not sure if she may be mild autistic or her social issues are due to severe shyness/extreme caution of people so those skills didn't develop as well due to avoidance.
Since a baby I noticed she would be physically uncomfortable if people looked at or spoke to her. She is still the same now but not with mum, dad and a few of her closest friends where she is quite comfortable. With the majority of people she comes in contact with, she isn't comfortable with socially and describes herself as awkward, finds socializing awkward and difficult. She went to toddler group, nursery at 2, started school at 4 but before she was 6 she never interacted with the kids and had poor social skills already, yet begun taking at 11 months old but other then with certain people, didn't know how to socialize it. Just watched kids mostly. She made a friend in yr1 but only because they came to her. She has a few friends since through school but again, they came to her. She cannot start conversations at all. She would never go up to someone and start talking.Never had friends out of school so on holiday, or half term clubs would sit alone watching kids play as wouldn't go up to them, she hoped they would go up to her. She can be very chatty at home or with few close friends. But at school and since nursery, she is pretty mute. You wouldn't know she was there. Yet at home she can talk about an interest non stop for 2 hours given the chance. She hates people staring at her. It bothers her a lot. Has a noise intolerance. School is hard for this but she don't want to attract attention much so don't tell teachers often unless really bad the noise, most time she puts up with it reluctantly, but they never pay much concern to it. She is funny with clothes too, pretty much wears the same clothes and type. She lives in one hoody currently. Even on hot days I'm struggling to get her in a t shirt. Anyway, my concern is she has social anxiety now last 2 years. She gets very anxious at school, especially with the teachers, the loud class room, unruly kids. I did speak to them to ask of they would keep an eye on her this coming sept, she be in yr8 then. She don't have much facial expressions unless at home or with close friends and this has caused her a lot of misunderstandings in schools etc as she looks sad, depressed or has an attitude. I've tried to give her tips on to smile and conversation starters but she still finds it hard. She is refusing support/therapy as she is uncomfortable talking to people anyway and gets anxiety. I bought her a book on social anxiety for teens but she says it's boring (without even reading it lol) so refuses it and when I try and support her she resists. She finds it hard to talk about her emotions and feelings so it frustrates her. She is happy when at home. But just anxious outside of it especially in school. I have suggest over years after school clubs to help her social skills but she refuses. She has plenty of online friends though.
Sorry this is long. I just don't know what to do as she struggles so much in most social situations but I don't know how to go about it without distressing her. She would get very very anxious having to talk to a stranger or even teacher. She is very uncomfortable with most people and prefers to talk very little if they are around. It's like trying to get blood out a stone unless she is talking to selected special people so not sure how they could even help her.
I must add. My brother was diagnosed with mild a few years ago in his mid 30s and my dad believes he is mild too. I got my daughter to do an online test of 30 questions. Results was 34 and over for autism and she only got in at 36..so I'm on the fence but I know it's online test so not certain. She can read facial expressions well. Just don't give them often herself around most people. She is a good people observer.
Replies
Unfortunately, the service @chiarieds has suggested is for parents who's child has received a diagnosis within the last 12 months. However, I do hope the community can offer you some guidance.
We are not medical professionals so unfortunately wouldn't be able to say if your daughter is autistic. It might be useful to look at how autism can present itself different in females.
Also, here are some articles from the National Autistic Society which I hope will be helpful:
- Getting a diagnosis
- Education
- Autism and gender
- Panel discussion on autism in females
My brother was diagnosed with Aspergers when he was 13, although we knew way before this point. Please do let us know how you get on and if there is anything else we can help you with.The National Autism Society has plenty of helpful reliable information https://www.autism.org.uk/. I hope this is helpful.
This could be an Auditory Processing Disorder (APD), which is about the brain having problems processing what the ears hear, which can include the sound based communication system we use, speech.
Those of us who have APD have problems processing the meaning and understanding the sounds we hear, especially when talking to others which can be worse when it is with others we do not know, as we are not best able to use our alternative compensating skills and abilities we use to work around our processing limitations. This can include lip reading and body language reading skills.
it is possible to have one or more type of APD.
I have a set of graphics which may help explain these issues on a web page at
https://dolfrog.wordpress.com/2020/04/03/some-auditory-processing-disorder-graphics/
and there is also a compilation of international research listed country by country which may help at
Some International Auditory Processing Disorder Research Papers
https://www.evernote.com/shard/s329/sh/f5a4fffb-bf47-491b-97e3-e3cbee583af6/514394d1b0bf900e8ab031ed701d89c7
The first paper lists the battery of diagnostic tests which investigate the wide range of complex issues
I hope this helps
She saw a couple therapists and in this time my friend's son was being assessed for ASD and ADHD. After many discussions with my friend, I asked my daughter's therapist to let me know if she picked up on any signs of ASD or ADHD and she said she did think there were some sensory issues.
So I went back to the GP for a referral for an autism assessment.
It sounds like you have really done your research and know all the boxes your daughter ticks. First the GP will want to meet her and then the GP will ask for your input in filling out the form for the referral.
Good luck and feel free to pm me if you ever want to chat about it!
Hi poppy, thank you for your reply. ☺️ I'm going to try the school route first then gp if they don't refer within 6 months of yr8 in sept. I hope the school can see what I see. She had only been at that school 6 mts before lockdown hit so they hadn't a chance to observe her properly. I don't think the auditory processing ticks all the boxes. But I could be wrong. There is too many other signs involved and with certain sensory issues with noise but also clothing. She seems ok with taste(food) and lights though. On top of this, she has said since she was 9 that she is different. Recently with some improved vocab, further went on to say she still feels that way because she don't fit in, just not like most other kids and feels something unique about herself. I mean, it says a lot really. She has noticed it. Not just me and she was the first to mention at 9 that she felt different to other kids one day out the blue which took me by surprise as she is an internal kind of kid when it comes to talking about emotions etc. It was sometime after that I started on the autism quest. Before that I just knew something but wasn't sure what.
How is your daughter now?
My daughter was diagnosed (formally) at 15. Sounds very similar to yours. Getting the diagnosis was life changing - in a good way. I now know better how to support her. She is 17 now, still akward, still shy, still hates leaving the house - but now we know why and that helps.
Good luck with your journey.
Autism is a spectrum of many combinations of multiple conditions.
You could have a look at my PubMed collection of Autism related research papers at
https://www.ncbi.nlm.nih.gov/sites/myncbi/1v9jzpUc5t6/collections/10371460/public/
which has been compiled over the last 10 years or more, especially as some who only have Auditory Processing Disorder are miss diagnosed as being ASD,
Being oversensitive to sensory issues is part of Sensory Processing Disorder, which can be another factor which can be part of the Autistic Spectrum.
I also have a PubMed "Sensory Processing Disorder" compilation at
https://www.ncbi.nlm.nih.gov/sites/myncbi/1v9jzpUc5t6/collections/10634081/public/
They may help explain some of the issues
Please do let us know how you get on. You don't need to do this by yourself.