-
Support/resources for parents with disabilities,
Hello! I'm Ellie and I live in a town in Devon. Dartmoor is one of my favourite places - although it's not the easiest place to visit with mobility issues, I always feel uplifted after going there. I have increasingly bad M.E / CFS and suspected POTS. We have twin boys aged 7. They are wonderful but we are really…
-
Looking for advice on whether to seek genetic test for child
Hello, my partner has HNPP a genetic condition that is degenerative and causes pain and loss of sensation in his hands, arms and legs. It is Hereditary and so our two children (age 6 and 1 years old) have a 50% chance of also having it. We had assumed initially that we wouldn't get them tested and would instead let them…
-
Teenage asd son and wanting more independence
please help, I’m So lost and not a clue what to do, my son has asd and since his become a teenager and noticing his younger cousins are going out with friends, he wants to know why he can’t go out. My son is very ditsy and very easily distracted, he looks a lot older than he acts. But he wants to know why I won’t let him…
-
Help for my son who is autistic but not diagnosed
I just stumbled across Scope while searching for help for my son who is definitely Autistic. Never diagnosed. I tried so hard to get a diagnosis when he was in school but they thought he is not severe enough. Struggled through the education system but now can't find work. Has difficulty communicating, gets depressed,…
-
Hi, my name is Amarose55! Would like to speak to other parents of Autistic young people, any advice?
I would like to speak to other parents who have an newly Autistic diagnosed 18 young person. I need some advice please. I am stressed and tired. I have left my Nurse job and l am at home now for 1 year. I am facing challenging issues. Please help any suggestions. I need to go back to work. Thank you.
-
Bath seat suitable for 22month old
Hi, I’m hoping for some advice. My little girl is 22 months. She currently uses a baby bath seat but she has now outgrown it. I can’t seem to find one online. Without a bath seat she is really unstable sitting in the bath so it’s safer for her to use a bath seat. Is there any suggestions on suitable bath seats?
-
ADHD, Sickle Beta-Thalassemia, Pica, Possible Autism? Tearing Clothes & Sores
Hello, My daughter is 8, she was born with a spot on her brain the doctors never investigated any further and almost seem like they wanted to hide it or not address it, we only found out because we demanded a scan, she has ADHD to the point if you tell her to do something or stop doing something she will say she got…
-
Privacy
I have been told l have to let anybody into my my room. The amount of people coming it will be like sitting in a high street
-
Uc
hi I’m old legacy benifits at the moment , now I’ve lost dla for my son due to no renewal form being sent out I’ve put that in now tho , I’ve lost tax credits for him due to this , now I’m due to on uc July will child Element be backdated disbalty part , I’m in a bad place over this , i have 3 children , ones waiting on…
-
Nappies
Hello, One of the HCAs in the rehab has bought me nappies A pack of 42 this will give me peace of mind and stop me worrying that l am going to be caught short.
-
IPSEA EHC Masterclass
Parents and carers We have a handful of places available on our EHC plan masterclass training session on 27 June (delivered virtually via Zoom).Places are £65, but we also have a few funded spots available for parents and carers who are unable to access a full cost place.Book here: https://buff.ly/4e6NJnKApply for a funded…
-
Youngest daughter gets bullied at times
Youngest daughter gets bullied at times,she is 13.It is by two 8th grade girls and admit the the principal is trying well.It it is their parents that will not do a thing on their part.Good thing is she has good friends that reported it to the principal whom have witnessed it happen to her.They bully her because I am…
-
Learning Disability Diagnosis
Hello, I am a Mum with a 21 yr old who is Autistic and also has a Learning Disability. She has a friend from daycare who I am sure has a learning disability, but she is not diagnosed. I am sure I saw a template form that could be completed to send to the GP to request that her learning disability could be confirmed, and…
-
Am I required to pay for Step Child maintenence
Hi, I just wanted some advice please. If my wife and myself divorced would I be required to pay any money for my step child legally? We have been together 10 years and married for 6. The child is 14. Any help would be much appreciated. Thanks 🙂
-
Autistic child won't leave the house
Hi all, I'm hoping some other parents of children with autism/ADHD can empathise/support here. My son is almost 10 years old and mostly refuses to leave the house. He hates any outdoor activities, I have tried everything from extravagant days out to quiet simple outings. I have tried clubs, classes, activities, and…
-
How will my son's job affect our financial life?
Hi everyone I’ve joined for advice please and glad I found you. Our disabled son with ehcp leaves college this year and has got a job. We are on pip and uc (just migrated). I’m wondering how this will affect financial life and trying to prepare myself. I am registered disabled too and my husband is our carer. Basically I’m…
-
18 year old son stays in his room all the time
I have an 18year old son on the spectrum I am a solo mum and love him so much but I feel we are becoming distant as he stays in his room all the time. I, we need some help!
-
Hi, my name is CMO88! 2 year old going through various tests due to a delay in her motor skills
Hello, My 2 year old is currently going through various tests due to a delay in her motor skills including speech. I just thought it would be useful to connect with other people in the same situation and if possible for someone to tell me this isn't the end of the world and there is a life beyond this.
-
Son has left education
Morning, My son has left education has a severe learning disability so unable to work so we've had to make a UC claim in his own right. I'm confused on how they work out his rate and obviously they are going to stop my UC rate of having a severely disabled child. So how is it all going to work out. I am his appointee. I'm…
-
Baby with potential neurological disorder
Hello Just looking for some support/advice. We have a 9 months baby who from a motor perspective behave more or less like a 3 months baby (no real control of the head, fists often closed, he doesn’t roll or sit). He has been investigated since he was 7 weeks old as it took him over 3 months to smile, look at people and…