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Moved: SDR
This discussion has been moved.
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Hi, my name is Mummabecks07! How do other parents cope?
I am a mum of 7 with 5 living at home I am on my own and I am currently my 7 year old son is getting assessments for autism it's been a long struggle since he was very young how did other parents cope with the frustration of the system and how long it takes the lack of support from school?
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Do you know of any affordable half term activities?
I don't have children myself but I can imagine that, for many, there'll be little money spare to spend on half term activities this school year. What are your favourite affordable half term activities? Bonus points for if they're accessible for disabled parents and children!
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Caregivers' Mental Wellbeing Support
Caregivers' Mental Wellbeing Support Let’s shout out to the caregivers in your life as they are superheroes.https://www.disabilityplus.co.uk When I was 11, my dad left; I did not understand why then, but as I got older, I realised it was partly my situation and the stress they were experiencing. My mum never spoke to me…
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A court are trying to force my autustic son to see his mum. Any advice?
Hi I'm new to this sort of thing but I am in need of some advice please, I have an autistic son who is now 12. Me and his mum split 4 years ago and he told us at that time he would not accept us with anyone else which we both promised him we would stay single until he was ready no matter how long it took, I stuck to my…
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Hard Times adjusting.
Hello all, I have no one to talk to about this, so I thought I'd put it out there, in the hope someone could guide me. Like the title says, I'm having a bit of a hard time, with my 11 year old. He wants the life his friends have. He is starting to push boundaries, break rules & has developed this lovely "I don't know, I…
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Parent with disability and school. What have people done?
Hello everyone. I would really like to know about other people's experiences and things they have done to manage with their children and school when you have a disability. I have a hidden disability and also bowel and bladder problems which affect my daily life. I don't however meet the criteria for a blue badge. I had to…
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Son missing college
Our son has ADHD and complexities. He is waiting for an autism assessment. He left school with just 4 GCSE at levels 1 and 2, despite numerous extra English and maths classes etc. College started in September and he's not interested. His whole attitude is very poor. He hangs out at the park and bike track, can't get to…
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30 yearl old daughter who was diagnosed at 16 with ocd and Asperger’s, lacks motivation
Hi I’m new to this forum but it would be nice to chat to parents in the same situation as me. I have a 30 yearl old daughter who was diagnosed at 16 with ocd and Asperger’s, she also has non 24 hour sleep disorder. She still lives with me and due to erratic sleep times has never had a job. I worry so much about her future…
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Advice-attachment issues
Hello everyone I would welcome any advice on how to help my 5 Yr old whom has Asd. In addition to her Asd she has had numerous periods of time in hospital due to physical conditions requiring extensive surgery and immobilization between the ages of 1 and 4 which has meant she has attachment issues. Have any other…
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EHCP tribunal
Hello I Am new to this group and I come to you stressed out and in a panic I submitted my sons appeal for educational and health care plan to tribunal and the court came back that I did not submit the full signed letter which I did on the 5th September. I then received another email today advising that you did not submit.…
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Both spouses with chronic conditions
I am writing this because I am a bit unsure whether I am reacting as I should to my spouse. She has fibromyalgia and has had it for a good number of years now. In the last week she has been having an episode, she wakes up with hand pain, and walking causes pain to feet and ankles, and she said also that she had pain at her…
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Change from tube feeding to puréed/solids
Hello. My niece is seven years old and has Down syndrome. She has been tube fed her full life but we have tried (on the advice of S&L) to continue trying her with wee bits of solids and some water, which unfortunately doesn’t seem to be working. My thoughts are on trying to wean her like you would a baby so going back to…
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What would an inclusive, accessible playground even look like? Vote now
Too many disabled children are being denied fun and friendship at their local playground because it isn’t designed for them. Our Let's Play Fair campaign is calling on the Government to invest in a multi-million pound inclusive playgrounds fund that will make play fun, safe and open to all children. To help the government…
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My daughter has recently been diagnosed with autism ,but what now.
Hey I'm feeling a bit lost.my daughter (12) has recently been diagnosed with autism and O.D.D. It has taken years to get her diagnosed. I had the zoom call with some paediatricians and psychologists to confirm and then received a letter stating it. But my worry is that, that's it.they are not helping me with any of her…
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How did other parents cope
Hello I'm new here and am the parent of a beautiful little girl with asd and physical disabilities.she is 6 now but recently I hsve been thinking about when it all started with her diagnosis just after the age of 1 and still feel quite aggrieved and low about how her childhood has been affected by the constant medical…
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Hi, my name is emmajayne advice for my son age 9 already diagnosed at 5 not accepted for any service
Here I am, hello. seeking help and advice for my son age 9 already diagnosed at 5 but not accepted for any service to help within knowsley borough. camhs knowsley,sefton and alderhey referals from GP & NEURO TEAM all rejected, CBT- nope school not supporting, feel the need to screammmm!
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my husband is my carer but a pensioner
Hello. First time posting. Not sure if anyone can give any advice. I am a pensioner (just) with a full PIP . My husband started to receive his state pension a year ago. we are both not receiving a full state pension. My husband was working part time but gave this job up in April to care for me. He now works 4-5 days a…
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Hi, my name is Daniel I'm facing some challenges with my daughter's behaviour. Any advice?
I am a single Father of a 10 year old girl and my life is a complete and utterly misery. It breaks my heart to feel like this as my daughter was also my best friend and I will do anything for her but it seems I am constantly at war with her at the moment amd our bond is fading day by day. Everyday is a battle and I am both…
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Hi, my name is stressedmum38_! My son stays up all night and won't leave the house
Hello my son is 18 and will stay up all night sleep all day and will not leave the house, has stopped coming downstairs and is always moody!! I’m sick of it waiting his asd diagnosis but I feel like I have a stranger in my home!!!