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Hi, my name is ladybug73!

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ladybug73
ladybug73 Community member Posts: 5 Listener
edited December 2022 in Start here and say hello!
Hello, hello, I’m new to this, hope you have survived a blurry But lovely Christmas. My eyesights are always terrible at Christmas because of different colours, moving things and dark days etc. I am optic atrophy, colour blind and wobble eyes, can’t spell proper word begin with N!   Just hoping somebody out there with same conditions more or less. 

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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
    edited December 2022
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    Hi there @ladybug73 and welcome to the community, thanks for joining and sharing a bit about yourself :) 

    You might like to visit our sensory impairments category to chat with other members who might have similar conditions. In the meantime, have a look around the rest of the forum. When you're ready here's a few of the best places to get started:
    • Recent discussions is where you'll find all the latest conversations our members are having
    • The categories page shows all the different topics for discussion
    • The virtual coffee lounge is a place to chat, get to know other members, and play games too
    Let us know if you need a hand with anything, and enjoy your evening :) 
    Online Community Coordinator
    Scope

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  • ladybug73
    ladybug73 Community member Posts: 5 Listener
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    I couldn’t find art, entertainment, tourism catalogue on this website. Is it something we like to talk and improve things like going to theatre with vision aids.  When I start new thread, I can’t find +new post on right hand corner and I cannot read list of categories because the list is tiny on my iPad. I tried zoom it but it like the rest of other websites. Any help please? 
  • durhamjaide2001
    durhamjaide2001 Community Co-Production Group, Scope Member Posts: 10,884 Disability Gamechanger
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    Welcome to the community @ladybug73 some our us will be able to relate to you about not enjoying Christmas you are definitely not alone in this and the community here will support you as best we can if you have any questions just ask 
  • chiarieds
    chiarieds Community member Posts: 16,127 Disability Gamechanger
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    Hi @ladybug73 - & welcome to the community from me also. Having problems with wobbly eyes beginning with 'N' is nystagmus; my son & I have this but only at the extremes of our lateral vision.
    There's a limit to the categories that would cover everything, but as Alex mentioned there's one for sensory impairments.
    You can post anywhere however or discuss things in this thread you started.
    I'm sorry you're having difficulty seeing where to do a new post, or the different categories. I don't know if you can access the 'Brightness' option as I certainly find that I prefer switching to the 'Dark mode' easier in the evening, or depending on the amount of natural light as at this time of year.
    I only use a desktop computer, but wonder if you've tried your ipad's accessibility features: https://support.apple.com/en-gb/guide/ipad/ipad9a2465f9/ipados  Sorry if you have done as you mention zooming in.
  • ladybug73
    ladybug73 Community member Posts: 5 Listener
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    Thank you, I m afraid I cannot use dark mode as I’m colour blind. The dark mode is too strong. Still cannot locate new post anywhere .  I don’t have PC. I’m learning to spell Nystagmus. I can see deer type ‘stag’ in the word so hope to remember that. I only discovered I love 💕 have it last year after hearing Richard Osman on radio talking about his wobbly eyes experience. I’m almost choke when he mentioned he thought the hose pipe is piece of art. I am the same! My eyes get wobble when I went to crowded places like party, popular exhibitions  years ago.  I tried to control by blinking, and look in somewhere less crowded. I am avoiding these events for now. I don’t mind. But I learn the tricks when we have family dinner by focusing on someone face. Sometimes they spot my eyes wobbly and ask if I’m ok. At Christmas, table were covered in lovely Christmassy patterns and I couldn’t look at it. So I have arranged 2 bold table mats around my plate/ bowl so I don’t get wobbly eyes. I can’t see chicken, turkey, bread sauce, mashed potatoes, pasta, white gravy on white plate for years. I have my own dark plate! I can’t see glass I often knock them over for years. I have my own coloured glass.  Sorry to go on but it’s first time I talked about my sight impaired. I have a cane with Rover tip (wheel) as I got low vision on grounds, steps, slopes, roots etc. I am not allow to drive since I found out when I was in my teens. I love walking though. I don’t have proper glasses but near enough ones as my eyes are rare mixed up with three different eye issues. Strangely I can read my books well but not long distance. I love my binoculars. Going to sleep night night all hope tomorrow is better day but bad weather ugh! 
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    There's no need to apologise @ladybug73 it's very interesting to hear about the ways you manage your Nystagmus. Have you been able to go on any walks over the Christmas break?

    I hope you've managed to sleep well, and hopefully the weather has calmed down a bit now! :)  
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    Scope

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  • chiarieds
    chiarieds Community member Posts: 16,127 Disability Gamechanger
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    Hi @Alex_Scope - are there any accessibility features available for this online community platform, or can anyone on Scope's tech team advise to help @ladybug73 navigate more easily, please?
  • ladybug73
    ladybug73 Community member Posts: 5 Listener
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    Thank you, tech team

    i didn’t manage to walk over Xmas break because I got cold!   Plus horrid weather. I always wonder if cold can make eyesight worst? In early December, I can’t see ice  very well but I wore snow boots and very sensitive feelings on ground with Rover cane and with caution. 

    I only have Rover for over four years now because when I went shopping I have a big fall over the step I didn’t see that, I cried because it’s hurt so much and my knees were in rainbow bruises and horrid cuts. It’s final straw for me as I have big falls before. Once time, in autumn years ago I saw a heap of leaves thinking it’s safe to sway them with my feet with noises but unfortunately there was a hidden small branch underneath and made me land over few inches away, I was in shock and walked back to office where my colleagues saw blood and rush about getting first aid etc.  To do something about my falls, I saw a young girl walking with white cane so that’s inspiring. Having Rover made me feel safe espically in forest.   

    Does anyone got a Rover?  



  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    That's okay @ladybug73 it would be helpful to know a bit more about what happens when you try to zoom in, can you talk us through the process? :) 

    I don't have any experience using a rover cane, as I'm not visually impaired, but it certainly looks like a great piece of kit, and I'm glad it's been so good for you to use, especially out in the forest. I think it's very beneficial spending time in nature!
    Online Community Coordinator
    Scope

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