CP treatment in adults

MorganFarrier

I was wondering what treatments people have had for adult CP I have spastic CP in my legs it effects my right leg more than my left leg more so my calf and quads I experience pain daily and have trouble walking most days I’m having a neurology appointment soon I used to have leg splints as a child and night splints aswell eventually they gave me a choice to wear them or not obviously due to bullying and before going to highschool I chose not to my GP now is shocked because he says I shouldn’t have been given a chose as I still need them what are some treatments people have had for spastic CP in the legs or one leg 

Alex_Alumni

Hello there @MorganFarrier and thanks for your query. I have a similar type of CP to yourself, but I know that everyone experiences it differently.

It's really positive to hear that you've got a neurology appointment coming up, hopefully that will help with some structure for managing your spasticity day to day. Do let us know how you get on. 

Up: The Adult Cerebral Palsy Movement is a great website for guidance and support with managing CP as an adult. Very often there's a lot of information out there about CP in childhood, and not a lot on how it impacts things in adulthood. Hopefully this will be useful for you! 

I can see you've already met my colleague @Richard_Scope in another thread, so do take a look at the resources he's shared

I look forward to hearing how things go, so keep us updated when you can.

Richard_Scope

Hi @MorganFarrier
How are you?

An appointment with a neurologist is a great start. 

Scope has partnered with an organisation called Bobath to create Adult Cerebral Palsy reviews. All the information that you need is within the link.

Also, there is a lot we do for ourselves This free physio app might be of interest to some. It illustrates 600 exercises, many of which appear to be appropriate for some people with CP: 
https://www.physiotherapyexercises.com/ 
 
Not as good as consulting a physiotherapist but we all know how difficult that can be these days!

Poppy_

Hi, how are you?
I also have CP that mainly affects my legs. I haven’t had much treatment for the spasticity in my legs, since ageing out of children services. I do have a physio but that’s mainly for issues I have with my feet, due to tip toe walking until I had Achilles’ tendon and hamstring lengthening. I was referred to them after my last foot operation by my orthopaedic surgeon. My orthopaedic surgeon kept me on after I aged out of children services, as I was transferred to him when I was 16 nearly 17. He corrected my feet, as they had issues due to tip toe walking for so long. 

I also had some botox at around 16/17, just before I aged out of children services, to help with spasticity in my right leg, which is more affected, in terms of spasticity. 

I hope your neurology appointment goes well