Adult Cerebral Palsy Reviews from The Bobath Centre — Scope | Disability forum
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Adult Cerebral Palsy Reviews from The Bobath Centre

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Richard_Scope
Richard_Scope Posts: 3,660 Scope online community team
edited February 14 in Cerebral palsy
At Scope, we recognise the importance of annual reviews in helping adults living with cerebral palsy maintain their independence and the life they choose.  We are proud to support Bobath in offering this service to the adult cerebral palsy community.

Have you ever wanted to discuss your cerebral palsy with someone who understands? We are delighted to be formally launching our Annual Review service!

It's your chance to meet an experienced CP specialist who understands your everyday concerns and challenges. With their support, you can manage your ongoing care and tackle issues that arise as you get older.

This service has been developed following a comprehensive clinical pilot, which was led by our Senior Neuro-Physiotherapist, Rajkumar Rajan and designed following feedback from adults with CP.

Find out more about The Bobath Adult Annual Review
Patient Annual Review Infomation Leaflet to show your G.P.
Information about Individual Funding Requests (IFRS) on the NHS


If you want to talk about having an Annual Review, let me know!

Scope
Specialist Information Officer and Cerebral Palsy Programme Lead

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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
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    Thank you for sharing this with us @Richard_Scope. It sounds really important! 
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • forgoodnesssake
    forgoodnesssake Community member Posts: 508 Pioneering
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    This sounds a great and long overdue service.  I hope the cost is not prohibitive.  My son (now 24) went to Bobath quite a few times until he was 18 (and saw this physio in later years too) and the NHS actually covered the cost (though we had to cover the £1000s it cost us to go to London and stay there for 2 weeks at a time)
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
    edited November 2022
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    I also hope the cost is not prohibitive @forgoodnesssake. Thank you for sharing your positive experiences with us.

    I am sure your positive experiences will be invaluable to people going through similar things.

    Though, I can also hear the costs you had to pay to go to London and stay there for 2 weeks at a time  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • forgoodnesssake
    forgoodnesssake Community member Posts: 508 Pioneering
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    Update: my son is planning to got sometime in July or August.  The cost is just under £400 for 1.5 hour detailed assessment and report.  it will actually be with a therapist my son has seen a few times before when he was still under 18 (now 25) so that will be interesting.  Paying out of PHB.
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
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    How are you both feeling about this at the moment @forgoodnesssake? Hopefully, it will help that it is with a therapist who your son has seen a few times before  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • Richard_Scope
    Richard_Scope Posts: 3,660 Scope online community team
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    I had my annual review there last August, @forgoodnesssake. The report is very comprehensive. I'm still waiting for my G.P. to action any of the recommendations!
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
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  • forgoodnesssake
    forgoodnesssake Community member Posts: 508 Pioneering
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    @L_Volunteer @Richard_Scope Booked now for 23/8/23.  I think son is really looking forward to it and we hope the report will be helpful to ongoing input (ha ha!) As he is fully CHC PHB funded, but with absolutely no clinical oversight (that's another story) we will be paying out of that budget.  No been to the new place in Watford before but think accommodation will be easier and cheaper to find and then we'll have a day out in the big city by train!
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
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    This sounds positive @forgoodnesssake. As you have said, hopefully, it will help inform ongoing input. Does your son like the train? Wishing you the best of luck with this, hopefully, the accommodation will make it easier and cheaper to find the new place in Watford  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • forgoodnesssake
    forgoodnesssake Community member Posts: 508 Pioneering
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    Thanks.  Son is 25 and a maths university undergraduate...but he still likes trains!

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  • forgoodnesssake
    forgoodnesssake Community member Posts: 508 Pioneering
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    Just back from very useful session with Raj (physio) at Bobath.  Definitely worth it and the report he writes will be very important for forthcoming CHC review.  Also some simple practical suggestions for everyday management (which is basically what this was about...it wasn't physio as such but just to help my son maintain functions and avoid preventable issues developing) 
    My son is already wanting to book for next year!
    A couple of tips:  The new place in Watford is on a light industrial estate and not really walkable to any cafes or anything.  We ended up driving to Tim Hortons, about 10 minutes away.  Don't bother...it was awful!!! there are supermarkets nearby that will have cafes plus a McD's.
    We stayed in the Travelodge Watford central the night before.  It's OK but not cheap (but the cheapest i could find with an accessible twin room)  But the biggest issue was parking.  There is none if your car is over 1.90 high, which most WAVs are.  I had asked the hotel twice about disabled parking and they had assured me there was a multi right next door (there is) and that it also had disabled parking.  And yes, there is a shopmobility section...but it's all accessed under the same 1.90 barrier!  So we ended up having to park at the station car park almost a mile away, and walk back and forward with all our stuff.
    The good news about the station is that with a blue badge you can register for free parking with the Midlands rail company and that covers quite a few stations (none of them any use to us normally!)  the bad news is that there seemed to be very few disabled bays in a large car park that was accessed under a very low 2.2m tunnel bridge!  We were just OK, but any higher and I'm not sure where you park!
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  • Margare93222061
    Margare93222061 Community member Posts: 426 Pioneering
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    Automated services are no good for people with cp when  you have to use your voice
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