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Hi, my name is Tilray!

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Tilray
Tilray Community member Posts: 6 Listener
edited January 2023 in Start here and say hello!
Im just starting my journey and would welcome any input
Diagnosed as autistic at 11 years old and spent 4yrs in a home for autistic children. I grew up thinking it was an orphanage.,None of us there new we were autistic We all thought it was just a violently run childrens home. I am now in my late 50s but only discovered all this last year.Todays tests are indicating iam severe high functioning dyslexic,ADHD and it looks like a few more things. 
If anyone has any suggestions of help as its blown me away,no wonder I always throught life was hard.

happy new year and peace

Comments

  • poppy123456
    poppy123456 Community member Posts: 55,264 Disability Gamechanger
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    What sort of help are you looking for?
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Tilray
    Tilray Community member Posts: 6 Listener
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    Hi Ada
    Thankyou for your reply.Sorry to read you had the care system in the 70s,must of been hard
    All this has come out of the blue so its hit me a bit,suicidal at points. I don’t know what help i need as i have somehow winged it through life well. I think im viewed as a “made it well in life,with few probs on the way” guy.I struggle every day and always have done.
    This first step is good for me as i have no idea where i need help specifically. Computing it all in my head still 
    Thanks again   
  • chiarieds
    chiarieds Community member Posts: 16,133 Disability Gamechanger
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    Hi @Tilray - welcome to the community, & wishing you a Happy New Year.
    On the one hand I think it helps to get a diagnosis, which then explains things more, but on the other hand it can be quite a shock, & may take time to take it all onboard.
    Remember you're still the same person, as getting a diagnosis doesn't change you in the slightest, so please, above all take very good care of yourself.
    I couldn't help notice part of your post which you've since edited; please talk to your GP as there is help out there such as eye movement desensitisation and reprocessing (EMDR).
  • Tilray
    Tilray Community member Posts: 6 Listener
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    Hi and thankyou for the link.The NHS/system/society failed me at age 11 to 15 so I haven’t used or trusted any of it since then.Having said that i have managed to progress well enough through life. Now knowing i was and always have been Autistic answers so much but leaves me crawling away from the world a bit
    institutional help is daunting to me but i will do what ever is needed now
    thanks again everyone for taking the time to read my post,
  • Adrian_Scope
    Adrian_Scope Posts: 11,140 Scope online community team
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    Good afternoon @Tilray and welcome to the community. I can imagine that's quite a lot to wrap your head around at the moment. Getting to grips with a later in life diagnosis of autism and what that actually means can be quite challenging and will throw up a range of new lenses through which to view your life up until this point. It might be worth checking with the National Autistic Society who have some useful information on what to do following an autism diagnosis.

    If you're feeling suicidal at times, please make sure to reach out to Samaritans on 116 123, or if those feelings persist and you feel like you might be in danger, please contact emergency services. In the meantime, Mind has some tips about how to manage those thoughts.
    Community Manager
    Scope
  • Tilray
    Tilray Community member Posts: 6 Listener
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    Hi Adrian
    Many thanks for the reply and links.I liked your ‘a range of new lenses to view ‘ so very true.I don’t feel suicidal but i questioned the point of life and everything else.For the main part i feel fortunate and Blessed with the company of good decent folk. I’m still in early days so apologies for my meandering. I’m still trying to work out a reply for poppy1234 .Ive never been asked that lol
  • poppy123456
    poppy123456 Community member Posts: 55,264 Disability Gamechanger
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    Tilray said:
    I’m still trying to work out a reply for poppy1234 .Ive never been asked that lol

    If you have questions you can just post another comment on your thread and i'm sure someone will do their best to advise you.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Tilray
    Tilray Community member Posts: 6 Listener
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    Hi poppy123456
    Im learning so much that makes sense of so much. If that makes sense .im reading everything on living with dyslexia.This is helping a lot and my lovely wife of 40yrs is finding this so insightful
    Thanks to everyone so far 
  • Tilray
    Tilray Community member Posts: 6 Listener
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    Hi Adrian and poppy123456
    Can you close my membership/acc (i cant see how to).I’m going to try a dyslexic site/forum.Regarding me reporting the violence,yes i have hence the new discovery of my past. I have made a good life but i always thought it was an orphanage not a home for autistic children,thats the 70s for you.Reporting violence in the 70s as a kid didn’t ever work 
  • durhamjaide2001
    durhamjaide2001 Community Co-Production Group, Scope Member Posts: 10,897 Disability Gamechanger
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    Tilray said:
    Hi Adrian and poppy123456
    Can you close my membership/acc (i cant see how to).I’m going to try a dyslexic site/forum.Regarding me reporting the violence,yes i have hence the new discovery of my past. I have made a good life but i always thought it was an orphanage not a home for autistic children,thats the 70s for you.Reporting violence in the 70s as a kid didn’t ever work 
    @Giovanni_Scope who you  would need to speak about to cancel your membership on scope 
  • poppy123456
    poppy123456 Community member Posts: 55,264 Disability Gamechanger
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    Tilray said:
    Hi Adrian and poppy123456
    Can you close my membership/acc (i cant see how to).I’m going to try a dyslexic site/forum.Regarding me reporting the violence,yes i have hence the new discovery of my past. I have made a good life but i always thought it was an orphanage not a home for autistic children,thats the 70s for you.Reporting violence in the 70s as a kid didn’t ever work 

    You will need to contact the scope community team through email to ask them to close your account. The email address is community@scope.org.uk
    I don't know if anyone's working this evening, if not then it will be tomorrow when this done.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Giovanni_Scope
    Giovanni_Scope Scope Membership Team Posts: 150 Pioneering
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    Tilray said:

    Can you close my membership/acc (i cant see how to).
    Hi @Tilray

    I'm sorry to hear about what you said above, but I'm glad that @Adrian_Scope provided you with some advice and guidance.

    Regarding your request, I checked in our database and it seems like you are not a member of Scope.

    You can become a Scope member for free now, if interested

    Joining our membership is free. There is no set time commitment, and your membership does not expire. All you need to do is fill out our membership form.

    If you want to close your account on the Scope online community, @Tori_Scope or @Alex_Scope are the right people to speak with :smile:

    I hope it helps,

    Giovanni

    Giovanni Gaetani (he/him)
    Membership Programme Lead
    Here East Press Centre, 14 East Bay Lane
    E15 2GW, London (UK)
  • Adrian_Scope
    Adrian_Scope Posts: 11,140 Scope online community team
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    Good morning @Tilray. Sorry to read you'd like to close your community account. I'm sending you an email to confirm your request.
    Community Manager
    Scope
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