Hi, I'm LFC1! Worried about the long term future of son with CP. — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Hi, I'm LFC1! Worried about the long term future of son with CP.

LFC1
LFC1 Community member Posts: 1 Listener
edited January 2023 in Cerebral palsy
My husband and I are in our 70s with a son with CP in his 30s living with us. We are worried about the future, our health and ability to care for him, what he will do if he outlives us, making a will. Any help please?

Comments

  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
    Hi and welcome to the community 

    Its hard to comment without knowing nore info like savings inheritance what he is claiming now etc 

    You should get full benefit check done for him and make sure he has an advocate if he isn't able to sort out his own benefits and housing welfare rights or cab could be a good starting point 
  • Richard_Scope
    Richard_Scope Posts: 3,615 Scope online community team
    Hi @LFC1
    Thanks for your post. 

    Have you had a needs assessment from your local authority at all? A needs assessment is carried out by an occupational therapist alongside adult social care and should make sure that you and your son have all of the equipment or adaptions you need in your home to make life a little bit easier.

    Leaving a will is always a good idea. I would also check that your son is getting all of the benefits that he is entitled to as @janer1967 has suggested. 

    Disability benefits | Disability charity Scope UK
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • daresbury1978
    daresbury1978 Community member Posts: 55 Courageous
    Hi LFC 1! Has your son said anything about his personal wishes with regard to his short or long term future? I wonder whether he would cope with the idea of having a support worker living in your house with him once you are no longer able to care for him yourself? There are a range of models for supported living e.g. someone who would offer necessary support in return for rent free accommodation. In my experience it is best to avoid residential placement in a care home. Obviously I know too little about your son to be able to comment further but I wish you every success in your attempts to secure a meaningful future for him. 

Brightness

Complete our feedback form and tell us how we can make the community better.