Hi, I'm LFC1! Worried about the long term future of son with CP. — Scope | Disability forum
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Hi, I'm LFC1! Worried about the long term future of son with CP.

LFC1 Community member Posts: 1 Listener
edited January 2023 in Cerebral palsy
My husband and I are in our 70s with a son with CP in his 30s living with us. We are worried about the future, our health and ability to care for him, what he will do if he outlives us, making a will. Any help please?


  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
    Hi and welcome to the community 

    Its hard to comment without knowing nore info like savings inheritance what he is claiming now etc 

    You should get full benefit check done for him and make sure he has an advocate if he isn't able to sort out his own benefits and housing welfare rights or cab could be a good starting point 
  • Richard_Scope
    Richard_Scope Posts: 3,615 Scope online community team
    Hi @LFC1
    Thanks for your post. 

    Have you had a needs assessment from your local authority at all? A needs assessment is carried out by an occupational therapist alongside adult social care and should make sure that you and your son have all of the equipment or adaptions you need in your home to make life a little bit easier.

    Leaving a will is always a good idea. I would also check that your son is getting all of the benefits that he is entitled to as @janer1967 has suggested. 

    Disability benefits | Disability charity Scope UK
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • daresbury1978
    daresbury1978 Community member Posts: 55 Courageous
    Hi LFC 1! Has your son said anything about his personal wishes with regard to his short or long term future? I wonder whether he would cope with the idea of having a support worker living in your house with him once you are no longer able to care for him yourself? There are a range of models for supported living e.g. someone who would offer necessary support in return for rent free accommodation. In my experience it is best to avoid residential placement in a care home. Obviously I know too little about your son to be able to comment further but I wish you every success in your attempts to secure a meaningful future for him. 


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