Condition worsened...do I tell Pip

cellypenelly
cellypenelly Online Community Member Posts: 1 Listener
edited January 2023 in PIP, DLA, ADP and AA
Hi, I'm looking for other's advice/experience?
I've been on Pip daily living for 5yrs or so. In 2018 things got worse (athritus spine), I told Pip, I had to have a new assessment and they decided I wasn't entitled to anything. I don't know what happened...i asked for a review but no decisions were made etc and finally 19weeks later, someone said, oops sorry, here it as and you now get mobility. 
Things have gotten much worse...I now have to self catherterise and I have secondary fibromiagia which leaves me chronically tired and in pain. On the pip score matrix I'm way higher than I was. But my bad experience before means I'm too worried to tell Pip. Anyone had promising storyline?

Comments

  • bg844
    bg844 Online Community Member Posts: 3,883 Championing
    Doing a change of circumstance always carries a level of risk. I always advise people to get expert help in regards to making changes as you potentially could put your current award in jeopardy.
    Here is a good place to start:
    https://advicelocal.uk/
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    edited January 2023
    I would just like to add a warm welcome @cellypenelly. It is great to see you have joined us.

    The only experience I can share with you is that I also have fibromyalgia so I can only empathise with you.

    Please don't hesitate to let us know if there's anything else we can do to support you. We are all here for you and listening to you  :)

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