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Sunshine Score Research Project Needs You!

Richard_Scope
Richard_Scope Posts: 3,615 Scope online community team

Evaluating the SUNSHINE Score

Sheffield University Neuroimaging Score for Hypoxic Ischaemic Neonatal Encephalopathy

Patient and Public Involvement (PPI) in Research Design

Chief Investigator: Dr Daniel Connolly, Consultant Paediatric Neuroradiologist at Sheffield Children’s Hospital

Associate Investigator: Dr Hannah Holmes, Neuroradiology Fellow at Sheffield Children’s Hospital

 

Dear Parent/guardian,

We would like to invite you to take part in designing our research study.

This study looks at children who experienced hypoxic ischaemic encephalopathy (reduced oxygen supply to the brain) during labour, delivery or shortly after birth. Many of these children get Magnetic Resonance Imaging (MRI) scans shortly after birth to look for evidence of brain injury.

This study will look at a new score we have written for interpreting MRI scans in newborn babies with HIE to see if it is useful in real life. We are particularly interested in whether it can predict children’s developmental outcomes later in life.

Before we start the research project it is important that the public is involved in the design of the study. We are particularly interested in speaking to the families of children who have been affected by hypoxic ischaemic encephalopathy.

We plan to run an online session via Microsoft Teams on 17th February. During this session, we would like to find out more about your experience and ask questions that will help us design our study. We want our project to have a significant impact on the initial and long-term care of babies who may experience hypoxic ischaemic encephalopathy in the future.

We are also able to arrange for one of our research team to hold a 1-to-1 discussion with you over the phone after sending out some questions at a time that suits you.

As a thank you for your time, we would like to reimburse you with a £30 shopping voucher.

If you have any questions about this please contact our Patient and Public Involvement team on:

[email protected]

Many thanks,

Dr Hannah Holmes

Scope
Specialist Information Officer and Cerebral Palsy Programme Lead

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