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arg16
arg16 Community member Posts: 3 Connected
Hi, my name is Anna, I have Cerebral Palsy and have recently been tested for dystonia. If anyone has any advice on dystonia, please let me know. 

Thanks, 

Anna

Comments

  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,741 Disability Gamechanger
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    Hello @arg16 and a big warm welcome to our online community, how are you doing?

    It's lovely that you have found us and I'd highly recommend you taking a browse through our Cerebral palsy category to see others experiences and stories. 

    I'm not overly familiar with dystonia, but from this NHS advice page can see it:
    "is the name for uncontrolled and sometimes painful muscle movements (spasms). It's usually a lifelong problem, but treatment can help relieve the symptoms."

    Have you been experiencing a lot of the symptoms, and when do you expect to receive the results? 

    I'm going to tag in our @Richard_Scope - Cerebral palsy programme lead - so he can get back to you when he's next on the community too  :)

    Take care and should you need any support, we are here. Best wishes for a lovely weekend.

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  • Richard_Scope
    Richard_Scope Posts: 3,660 Scope online community team
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    Hi @arg16
    It is great to meet you. 

    It is possible to have CP and dystonic movement. Dystonia presents with uncontrollable muscle spasms triggered by incorrect signals from the brain, which can, for some, be painful.

    Dystonia can be treated with medication and other treatments. There is more specific information on the Dystonia UK website.

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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