Hi, my name is staypositive! Spinal Stenosis — Scope | Disability forum
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Hi, my name is staypositive! Spinal Stenosis

staypositive
staypositive Community member Posts: 6 Listener
Hi, after 5 montbs of agony, i eventuly got an MRI  scanwhich confirmed i had spinal stenosis. The worst bit about my experience was being told it was muscular and not having any pain relief as i have trouble with my stomache and could not take anti inflammatorys. I took soluable paracetomal which helped pretty much instantly for about an hour then the pain kicked in. I am  now on a smaller dose of Napoxen, which has been a game changer. I can niw get out of bed and can function on a low scale, which i hope will improve once i see the orapedic surgeon. Stay strong all and dont give up keep trying evevdry option. Staypositive. 

Comments

  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,741 Disability Gamechanger
    Hello @staypositive and a warm welcome from me! How's your day going?

    I'm sorry to hear you're experiencing chronic pain from your spinal stenosis and really hope seeing the orthopaedic surgeon can bring about some more relief for you. Your positivity radiates through your post though, and made me smile! What a great mindset to have.

    You might want to have a browse of our Physical and neurological impairments category as many other members have this condition and you may be able to relate to their stories and experiences.

    Wishing you all the best. Take care and I look forward to speaking again soon.
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  • staypositive
    staypositive Community member Posts: 6 Listener
    Thank you, i believe its important not to lose hope but appreciated how difficult everything can be when you're in pain. I will check out the catergory you suggested. Many thanks. 
  • Alex_Scope
    Alex_Scope Posts: 7,562 Scope online community team
    Hi there @staypositive and thanks for sharing a bit about yourself, I agree, it's important to to hold on to hope, while also acknowledging how hard it can be managing chronic pain. I hope you enjoy your time here on the community. 

    I'm sure you'll soon find you're not alone, many of our members are going through similar things, and the great thing is we can all support each other :) 
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    Scope

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  • Sandy_123
    Sandy_123 Scope Member Posts: 43,948 Disability Gamechanger
    Hi @staypositive welcome a lot of member suffer 
    With their backs including me. I'm glad you found something that works well for you. Look faward to seeing you around
  • staypositive
    staypositive Community member Posts: 6 Listener
    Thanks for message im sitting with a tens machine on at minute, got an appointment with surgical orthopedic's tomorrow so hoping i can get permanent pain relief and get back to work as without pain relief i cant function. Ive been looking into best exercises to do so i have something positive to focus on.
  • Sandy_123
    Sandy_123 Scope Member Posts: 43,948 Disability Gamechanger
    Good  luck with your appointment, you'll have to let us know how you got on, if you want to. Do you find the tens machine helps
  • staypositive
    staypositive Community member Posts: 6 Listener
    Its more of a distraction from the pain.that in its self helps.
  • Sandy_123
    Sandy_123 Scope Member Posts: 43,948 Disability Gamechanger
    If it helps its a good thing 
  • staypositive
    staypositive Community member Posts: 6 Listener
    Appointment assessment, got 6 steriod injection in back which is to help with numbness in leg. 6 days later and still have same symptoms. Hoping they may subside in next week or so. Can anyone advise what would likely be next part of process and what the success rate is. Im desperate to get back to work so i can start living my live again but seem to have hit a brick wall. As my review date is not until 4 months, any ideas what i can do in the mean time as i'll not be getting paid soon. I can still carry out every day activities but in so much pain and not sleeping so wouldnt be able to function at work yet. Any advice would be much appreciated.
  • poppy123456
    poppy123456 Community member Posts: 52,406 Disability Gamechanger
    We can't give any medical advice because we're not medical professionals and you should speak to your GP if you have any concerns.

    any ideas what i can do in the mean time as i'll not be getting paid soon.

    Are you currently claiming any benefits? if so which ones? Are you claiming SSP from an employer? Live alone or with a partner?

    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • staypositive
    staypositive Community member Posts: 6 Listener
    Hi Poppy, thanks for respinse.No im employed have no partner but have two adult working children at home. ive been on sick since November and was hoping pain woul be relieved with injections so i could return. My wage will stop next month. Is their any benefits i would be entitled to? Or do you know of any other Nhs treatment??
    Thanks
  • poppy123456
    poppy123456 Community member Posts: 52,406 Disability Gamechanger
    We can't give you any medical advice because it's against the rules to do that. We are not medical professionals.

    There's New style ESA but it depends on your NI contributions in tax years 2020/21 and 2021/22. You will need the SSP1 form and a fit note to claim this. If over 25 it pays £77/week. https://www.gov.uk/guidance/new-style-employment-and-support-allowance-detailed-guide#how-to-claim It's not means tested savings/capital and pensions of up to £85/week are ignored. It can also be backdated for 3 months (providing you weren't claiming SSP at anytime during those 3 months)

    Universal Credit but it's means tested. If you have savings/capital of more than £16,000 you're excluded from claiming. You should report your health condition if you claim and provide a fit note within 7 days of that and continue to send them without any gaps until a decision is made on your work capability assessment. Use a benefits calculator to check entitlement. https://www.entitledto.co.uk/benefits-calculator

    UC can also include help with any rent. If you claim help with the rent there will be a deduction of £77.87/month deduction for each adult son (if they are 21 and over) Unless either yourself or they are claiming either daily living PIP or mid/high rate care DLA. https://england.shelter.org.uk/professional_resources/legal/benefits/universal_credit/deductions_from_universal_credit_for_non-dependants

    If you claim both UC and ESA at the same time the ESA will be deducted in full from any UC entitlement.

    There's also PIP, unless you live in Scotland and then it's Adult Disability Payment. Neither of them are means tested so other income/savings/capital will not affect the amount you maybe entitled to. https://www.benefitsandwork.co.uk/personal-independence-payment-pip



    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.

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