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Hi, my name is blindmarcie!

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blindmarcie
blindmarcie Community member Posts: 3 Listener
Morning all, I was born with congenital cataracts, 15 years ago developed glaucoma and now have macular degeneration. My sight is gradually getting worse and in past 15 months I haven’t really left the house. I have a guide cane, hate it and it jars on pavement cracks causing hand and arm pain. How’s everyone else managing? 🤗

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  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
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    Hi and welcome to the community 

    I am severely vision impaired blind in one eye and limited vision in other I am also in a wheelchair I have tried a cane but impossible to negotiate a wheelchair and cane together 

    I now only go out escorted as I can no longer see well enough to use my electric chair 

    I did try a cane with a ball on the end which was bit better and you nay find useful 

    I find my sight loss tye most disabling of my conditions so totally empathise with you 

    I did get a lot of good tips from my local sensory team who also helped me navigate outside and follow a journey but my sight has got worse since then bur it could help you if you get in touch with them through your local council 
  • Lou67
    Lou67 Community member Posts: 7,615 Disability Gamechanger
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    @blindmarcie

    Good morning and welcome to the forum.
    Im sorry to read about your sight getting worse. It’s a shame you haven’t been able to leave the house much because off it.Could you try and get a guide dog, to help you.

    I just wanted to say hi and hope to see you around the forum.

    Take care ❤️
  • blindmarcie
    blindmarcie Community member Posts: 3 Listener
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    Thank you Lou67, I am on the waitlist…
  • Sandy_123
    Sandy_123 Scope Member Posts: 52,516 Disability Gamechanger
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    Hi @blindmarcie welcome to the forum. Hopefully you will get a guide dog soon, they are so good  I know a few people who have one. Just the waiting isn't it. Let us know when you do get one and if its better for you.
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Hello and welcome @blindmarcie and thanks for sharing a bit about yourself :) It's positive to hear you're on the waiting list for a guide dog, I'll sure it'll be a boost to your independence. 

    I'm sorry to hear you haven't been able to get out much, have you been able to access all the essentials you might need in terms of food, medication etc.? 

    I hope you enjoy spending time here on the forum, if you'd like you're welcome to visit our sensory impairments category, and indeed, I can see you already have! 

    Let us know if you need anything :)
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