Hi, my name is Emilia1978, I am new here. — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Hi, my name is Emilia1978, I am new here.

Emilia1978 Scope Member Posts: 1 Listener
I have CP and feel incredibly low and lonely, everything hurts and my body is painful. I feel alone in my experience, I also have fibro. I need to connect with others because my friends are all able bodied and don’t understand where I am coming from. 


  • Sandy_123
    Sandy_123 Scope Member Posts: 32,552 Disability Gamechanger
    Hi @Emilia1978 welcome to scopes forum. You've come to the best place to be understood, lots of members here have cp and fibro. 
    Have you spoke to your dr about your pain, tried different meds etc.  
    Join in around the site also and make virtual freinds. 
  • Alex_Scope
    Alex_Scope Posts: 7,562 Scope online community team
    edited April 14
    Hello @Emilia1978 and a warm welcome to the community :) I also have CP myself, and I can relate to sometimes feeling isolated among non-disabled friends, who don't really understand the impact of fatigue. 

    In my experience, sometimes I find that I 'mask' how tired I'm really feeling to fit in, so talking about this with my friends has helped them to understand a bit more and check in with me if I go a bit quiet when socialising. 

    Here on the community we have a category dedicated to Cerebral Palsy, as well as Chronic Pain and Pain Management, where you can chat to other members who really 'get it'. You're certainly not alone here, as Sandy says.

    Can I ask what kind of care you're getting for your CP at the moment, and what works best for you with managing pain levels? If you're struggling at the moment, it might be a good idea to check in with your GP.

    I'll also tag my colleague @Richard_Scope as a fellow person with CP, and our CP programme lead.

    Let us know if there's anything we can help with in the meantime :)
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to give us feedback? Complete our feedback form now.


Complete our feedback form and tell us how we can make the community better.