Hi, my name is Emilia1978, I am new here.

Emilia1978
Emilia1978 Scope Member Posts: 1 Listener
in Start here and say hello
Hi
I have CP and feel incredibly low and lonely, everything hurts and my body is painful. I feel alone in my experience, I also have fibro. I need to connect with others because my friends are all able bodied and don’t understand where I am coming from. 

Comments

  • Sandy_123
    Sandy_123 Scope Member Posts: 63,231 Championing
    Hi @Emilia1978 welcome to scopes forum. You've come to the best place to be understood, lots of members here have cp and fibro. 
    Have you spoke to your dr about your pain, tried different meds etc.  
    Join in around the site also and make virtual freinds. 
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,535 Championing
    edited April 2023
    Hello @Emilia1978 and a warm welcome to the community :) I also have CP myself, and I can relate to sometimes feeling isolated among non-disabled friends, who don't really understand the impact of fatigue. 

    In my experience, sometimes I find that I 'mask' how tired I'm really feeling to fit in, so talking about this with my friends has helped them to understand a bit more and check in with me if I go a bit quiet when socialising. 

    Here on the community we have a category dedicated to Cerebral Palsy, as well as Chronic Pain and Pain Management, where you can chat to other members who really 'get it'. You're certainly not alone here, as Sandy says.

    Can I ask what kind of care you're getting for your CP at the moment, and what works best for you with managing pain levels? If you're struggling at the moment, it might be a good idea to check in with your GP.

    I'll also tag my colleague @Richard_Scope as a fellow person with CP, and our CP programme lead.

    Let us know if there's anything we can help with in the meantime :)

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