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Hi, my name is NanaRita!

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NanaRita
NanaRita Community member Posts: 11 Listener
Hello there everybody. I got my diagnosis just today, and I still feel some very mixed emotions right now.  All I know about Fibromyalgia is what I read in the booklet I was given hours ago at the hospital. I suppose one could call me a newbie in the Fibro community. 

Nice to meet you all.

Comments

  • Sandy_123
    Sandy_123 Scope Member Posts: 52,628 Disability Gamechanger
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    Hi @NanaRita welcome to scopes forum 
    How do you feel about your diagnosis, having a diagnosis means you can  make plans going farward with treatments and finding  best ways to cope. 
  • Beaver79
    Beaver79 Community member, Community Co-Production Group, Scope Member Posts: 21,991 Disability Gamechanger
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    Hi @NanaRita Welcome to the Community from me too. If you have any questions please ask. Any new diagnosis can take some time to adjust to. Do you have a support team to help you? Have a look around and join in with us. Take care.
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Hi there @NanaRita lovely to meet you, and welcome to the Scope online community, thanks for posting :) You're certainly not alone here, as we have many members who live with Fibro or other chronic pain/fatigue conditions.

    You might like to visit our Chronic Pain and Pain Management category to chat with members who have a similar lived experience. 

    As others have mentioned it can take time to adjust to a new diagnosis, and there's no right or wrong way to go about it. Have you spoken to your GP or others involved in your care about things moving forward?

    Do let the team know if we can help with anything, and I hope you're enjoying the weekend!
    Online Community Coordinator
    Scope

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  • NanaRita
    NanaRita Community member Posts: 11 Listener
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    Thank you Alex. I haven't spoken to my local Dr, because he's on holiday for the next week. The only person I've spoken to is the Neurologist who have me my diagnosis. He was very kind and compassionate because I got a little teary eyed after he told me what my health issue was. Finally I had an answer to what's been going on with me for the last decade of my life. The Dr took me seriously and took time to explain things to me. I will be having Physio for my hands etc, and he is arranging for me to go to an outpatient Fibro support group. I will take a look at your group here too. Thank you for the link. Now it's just about coping with it and carrying on with life with this invisible desease.
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
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    @NanaRita Welcome to the community! You will find many here who are navigating through a new diagnosis and we are always here to listen :) Have you looked around the forum? 

    We have lot's of games, discussions and debates in Coffee Lounge if you'd like to join in. 
    Hannah - She / Her

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
  • NanaRita
    NanaRita Community member Posts: 11 Listener
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    @Hannah_Scope, Thank you for the welcome. I have only been part of scope for about a week, so I haven't had the chance to look around the forum much yet. It's on my to do list. I look at different aspects each time I come on here. I look forward to getting to know the folks on here. God bless you and all those you love. 
  • NanaRita
    NanaRita Community member Posts: 11 Listener
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    @Alex_ScopeThank you Alex. I haven't spoken to my local Dr, because he's on holiday for the next week. The only person I've spoken to is the Neurologist who have me my diagnosis. He was very kind and compassionate because I got a little teary eyed after he told me what my health issue was. Finally I had an answer to what's been going on with me for the last decade of my life. The Dr took me seriously and took time to explain things to me. I will be having Physio for my hands etc, and he is arranging for me to go to an outpatient Fibro support group. I will take a look at your group here too. Thank you for the link. Now it's just about coping with it and carrying on with life with this invisible desease.

  • NanaRita
    NanaRita Community member Posts: 11 Listener
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    @Beaver79, Thank you for the welcome. I am fortunate as I have my husband who is my carer, and two adult children that can rally round to help if things get rough. The hospital is offering me a Fibromyalgia support group, and physio for my hands and spine. We shall see where that takes me. I am just awaiting the first appointments for each one. 
  • Beaver79
    Beaver79 Community member, Community Co-Production Group, Scope Member Posts: 21,991 Disability Gamechanger
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    Hi @NanaRita I am glad you are getting some help and hope your appointments are soon. Please let us know how you get on. Take care.
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