Does anyone have experience with what it’s like to employ a Personal Assistant rather than having help from a care service that visits you at home?
Last November I started living alone at my own home again after 8 months living with my parents following the onset of FND which caused limited mobility, loss of coordination and fatigue. I wanted to live independently again to improve my mental health and learn how to live with the symptoms.
It has been so much better than living with my parents and I’ve become more mobile and started to regain some confidence. At the start I set up bi-weekly visits by a local care company (1.5 hours twice a week) to help me maintain the household, help with food prep and check in on me. Now over 7 months later my stamina has improved and my needs have changed. I still need some help at home but I can now do tasks such as doing the washing up. (I never expected I would be thrilled to be doing dishes!) I’m ready to start trying to engage with the world again. I’m getting a mobility scooter soon and need someone to help with socialisation support.
The care company is very flexible and would be able to help but they often swap around who’s coming and I would really like to have some consistency. I have awful confidence at the moment and the thought of trying to go out with someone I don’t know very well is stressful.
I think a PA would be better suited for my current needs but I’m worried about taking on the responsibility of finding someone and then what if they aren’t reliable? I’m a very anxious person and anxiety affects my symptoms.
I have financial support from the county council but it’s via a prepaid account so they’ve said I would be able to have a PA as long as they invoice.
