Really high anxiety

poppy123456

Is there any reason why you haven't responded to the emails the scope team have been sending you? They are trying to help you but they can't do this until you reply to the emails.

You keep saying you're scared, anxious and you have no food and you can't cook yet people on here have tried everything to try to help you but we hit a brick wall everytime.

surfygoose

100% Poppy is right. Replying to those emails is the best way to go.

All those things you are worried about can be looked in to if you respond to scope’s emails and let them help you make those first steps. I don’t think anyone is implying it will all be easy and happen instantly, sadly the system is stretched and things can take time, but the longer you leave it, the longer you will be extending your wait.

You mentioned that in Poland they had been looking for a family for you to live with. We have something like that in England called ‘Shared Lives’ where a person with a mental health problem, physical problem, elderly, autism or learning disability, can go and live as part of a family. It used to be called adult fostering because it is basically like being fostered by a family and you live as part of the family. They support you and help teach you skills for independence.

Also there are sheltered accommodation places, many for the elderly will allow someone to move in if they have a disability. You get your own flat and the neighbours are usually quieter! They usually have emergency pull cords fitted and someone that may phone or knock on the door to do a welfare check.

To get just better social housing, if you link up with all the support then you get a much better chance at being moved as a priority to somewhere suitable. They will know what you need and understand how best to express that need to the right people.

There are also supported living set ups where people have their own flats or a shared house. Sometimes there will be staff there all the time as background support or some places they may have staff visiting at certain times. They have those set ups for people who suffer with mental health issues, they aren’t just for autism or leaning disabilities. Your local authority would be able to help advise if something like that would be appropriate and which type of support you would benefit from.

As you can see there are many different options around, even having a carer just come to your own home for anything from a couple of hours per week to many hours per day.

You have often said you are put off from speaking to any of them because you don’t want to be taken in to a care home. I know I’ve said it before but you absolutely will not suddenly be whisked off to a care home against your will. They would always try the least restrictive options first and try to keep your independence and try their best to provide the support that you want.

Also even if ‘the worst’ happened and you did find yourself in a conversation about a care home, I think you may be frightened by the name. Perhaps it means a different thing where you are from and so has more negative connotations for you. Here care homes are just nice homes that have staff there 24/7 and all your rent and food and bills and care are included in one package. You still live as ‘normal’ a life as you are able and the staff do their best to help with that.

surfygoose

Are you ok @Agnia. You usually reply a lot and haven’t heard from you for a few days. I know you were struggling a lot when you last posted. Did you reply to the emails from scope? Let me know you are ok. I’ve been wondering how you are doing.

Agnia

Thank you so much surfygoose 
im sorry im feeling unwell 
yes i will reply to their email 
You really made everything very positive but im sorry i live in a very busy borough 

Agnia

im reading what you wrote surfygoose  
how will i manage on a wheelchair 
You are really kind and nice but not everyone is like that 

Agnia

Thank you for response poppy 

surfygoose

Hi Agnia,
Good to hear from you and sorry this time my reply was delayed!
That’s great news that you have replied to Scope’s email. I hope they have been able to be of help to you.
In answer to your question, I don’t know how well you would manage in a wheelchair but, if it does come to a point that you need a wheelchair then I imagine you will find it very helpful. If your mobility gets so bad you can’t get around without a wheelchair then I’m sure you will be pleased of the independence a wheelchair can give you. I hope it doesn’t have to come to that for you and that your mobility improves but if it does happen that a wheelchair is needed I’m sure the doctors or physio would give support to get used to it.