If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Hi, my name is RedWind!

RedWind
Community member Posts: 1 Listener
I have suffered from chronic head tension for the past 10 years. The tension results from my head being extremely sensitive to pressure from it being on a pillow while sleeping. My head will feel very heavy, slow, with a vice-like pressure for the whole day if I sleep on a bumpy/ flat/ thick pillow, along with me feeling like my personality is shut-down, my vision feels strange and muddled, and my brain finds it harder to process things.
I specifically only use the 'Vildkorn' pillow from Ikea, a polyester ball fibre pillow (I used to use the 'Hampdan pillow' but this was tragically discontinued a few years ago!).
I have to buy loads of the same pillow, remove them from packaging and work-out which one produces the least tension (each one comes out different after being removed from the plastic packaging). At the same time I gently pull the filling apart each day so it's less knotty, dense , through the cover of the pillow. This helps me make the pillow more the shape I want- but a 'good' pillow will only last me about 3-4 months, and it can take weeks to months trying to find the right pillow, and once a pillow has 'died'- become too flat- then I'm back in the chaos of trying to find the right pillow again, and trying to shape a pillow, so a lot of trial and error, and being in a lot of tension/ pain during this, also feeling uncertain about when I will actually find a good pillow again, and at it's worst this can feel like a really hopeless/ never-ending battle.
When it is fine- my pillow is just right and causing me little tension, I feel great and can almost forget I have this condition.
I have recently started to use acupuncture which has definitely made a difference, but so far hasn't massively changed the amount of tension I feel, although I plan to do acupuncture more regularly, like twice/ three times a month, rather than just once every few months.
I also take Vitamin B2 Riboflavin, along with Ginger/ Tumeric capsules daily- and they feel like they are making a slight difference.
I want to join this site, share my story/ situation in the hope of finding others going through a similar experience, and to find possible solutions that I hadn't considered.
My pain has felt particularly bad this year, and I am struggling to manage the head tension, so I really want to reach out and find a better way forwards.
I specifically only use the 'Vildkorn' pillow from Ikea, a polyester ball fibre pillow (I used to use the 'Hampdan pillow' but this was tragically discontinued a few years ago!).
I have to buy loads of the same pillow, remove them from packaging and work-out which one produces the least tension (each one comes out different after being removed from the plastic packaging). At the same time I gently pull the filling apart each day so it's less knotty, dense , through the cover of the pillow. This helps me make the pillow more the shape I want- but a 'good' pillow will only last me about 3-4 months, and it can take weeks to months trying to find the right pillow, and once a pillow has 'died'- become too flat- then I'm back in the chaos of trying to find the right pillow again, and trying to shape a pillow, so a lot of trial and error, and being in a lot of tension/ pain during this, also feeling uncertain about when I will actually find a good pillow again, and at it's worst this can feel like a really hopeless/ never-ending battle.
When it is fine- my pillow is just right and causing me little tension, I feel great and can almost forget I have this condition.
I have recently started to use acupuncture which has definitely made a difference, but so far hasn't massively changed the amount of tension I feel, although I plan to do acupuncture more regularly, like twice/ three times a month, rather than just once every few months.
I also take Vitamin B2 Riboflavin, along with Ginger/ Tumeric capsules daily- and they feel like they are making a slight difference.
I want to join this site, share my story/ situation in the hope of finding others going through a similar experience, and to find possible solutions that I hadn't considered.
My pain has felt particularly bad this year, and I am struggling to manage the head tension, so I really want to reach out and find a better way forwards.
Comments
-
Hello @RedWind
Welcome to the community!
It sounds like you've gone through such an experiment to get that right pillow. I hope the acupuncture helps ease that pain more. I'm sorry your pain has been particularly bad this year. Have you also spoken to your GP? I always find talking to my pharmacist beneficial as well
Hannah - She / Her
Online Community Coordinator @ Scope
Concerned about another member's safety or wellbeing? Flag your concerns with us.
Want to give us feedback? Complete our feedback form now.
Brightness
Categories
- All Categories
- 12.9K Start here and say hello!
- 6.6K Coffee lounge
- 45 Games room
- 429 Cost of living
- 4.4K Disability rights and campaigning
- 1.9K Research and opportunities
- 208 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.5K Work and employment
- 785 Education
- 1.6K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 613 Dating, sex, and relationships
- 370 Exercise and accessible facilities
- 758 Transport and travel
- 30.4K Talk about money
- 4.3K Benefits and financial support
- 5.1K Employment and Support Allowance (ESA)
- 16.4K PIP, DLA, and AA
- 4.7K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 858 Chronic pain and pain management
- 160 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 322 Sensory impairments
- 819 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.