Hi, my name is RedWind!
RedWind
Online Community Member Posts: 1 Listener
I have suffered from chronic head tension for the past 10 years. The tension results from my head being extremely sensitive to pressure from it being on a pillow while sleeping. My head will feel very heavy, slow, with a vice-like pressure for the whole day if I sleep on a bumpy/ flat/ thick pillow, along with me feeling like my personality is shut-down, my vision feels strange and muddled, and my brain finds it harder to process things.
I specifically only use the 'Vildkorn' pillow from Ikea, a polyester ball fibre pillow (I used to use the 'Hampdan pillow' but this was tragically discontinued a few years ago!).
I have to buy loads of the same pillow, remove them from packaging and work-out which one produces the least tension (each one comes out different after being removed from the plastic packaging). At the same time I gently pull the filling apart each day so it's less knotty, dense , through the cover of the pillow. This helps me make the pillow more the shape I want- but a 'good' pillow will only last me about 3-4 months, and it can take weeks to months trying to find the right pillow, and once a pillow has 'died'- become too flat- then I'm back in the chaos of trying to find the right pillow again, and trying to shape a pillow, so a lot of trial and error, and being in a lot of tension/ pain during this, also feeling uncertain about when I will actually find a good pillow again, and at it's worst this can feel like a really hopeless/ never-ending battle.
When it is fine- my pillow is just right and causing me little tension, I feel great and can almost forget I have this condition.
I have recently started to use acupuncture which has definitely made a difference, but so far hasn't massively changed the amount of tension I feel, although I plan to do acupuncture more regularly, like twice/ three times a month, rather than just once every few months.
I also take Vitamin B2 Riboflavin, along with Ginger/ Tumeric capsules daily- and they feel like they are making a slight difference.
I want to join this site, share my story/ situation in the hope of finding others going through a similar experience, and to find possible solutions that I hadn't considered.
My pain has felt particularly bad this year, and I am struggling to manage the head tension, so I really want to reach out and find a better way forwards.
I specifically only use the 'Vildkorn' pillow from Ikea, a polyester ball fibre pillow (I used to use the 'Hampdan pillow' but this was tragically discontinued a few years ago!).
I have to buy loads of the same pillow, remove them from packaging and work-out which one produces the least tension (each one comes out different after being removed from the plastic packaging). At the same time I gently pull the filling apart each day so it's less knotty, dense , through the cover of the pillow. This helps me make the pillow more the shape I want- but a 'good' pillow will only last me about 3-4 months, and it can take weeks to months trying to find the right pillow, and once a pillow has 'died'- become too flat- then I'm back in the chaos of trying to find the right pillow again, and trying to shape a pillow, so a lot of trial and error, and being in a lot of tension/ pain during this, also feeling uncertain about when I will actually find a good pillow again, and at it's worst this can feel like a really hopeless/ never-ending battle.
When it is fine- my pillow is just right and causing me little tension, I feel great and can almost forget I have this condition.
I have recently started to use acupuncture which has definitely made a difference, but so far hasn't massively changed the amount of tension I feel, although I plan to do acupuncture more regularly, like twice/ three times a month, rather than just once every few months.
I also take Vitamin B2 Riboflavin, along with Ginger/ Tumeric capsules daily- and they feel like they are making a slight difference.
I want to join this site, share my story/ situation in the hope of finding others going through a similar experience, and to find possible solutions that I hadn't considered.
My pain has felt particularly bad this year, and I am struggling to manage the head tension, so I really want to reach out and find a better way forwards.
0
Comments
-
Hello @RedWind
Welcome to the community!
It sounds like you've gone through such an experiment to get that right pillow. I hope the acupuncture helps ease that pain more. I'm sorry your pain has been particularly bad this year. Have you also spoken to your GP? I always find talking to my pharmacist beneficial as well
0
Categories
- All Categories
- 14.3K Start here and say hello!
- 6.9K Coffee lounge
- 74 Games den
- 1.6K People power
- 108 Community noticeboard
- 22.2K Talk about life
- 5.1K Everyday life
- 79 Current affairs
- 2.3K Families and carers
- 833 Education and skills
- 1.8K Work
- 454 Money and bills
- 3.4K Housing and independent living
- 915 Transport and travel
- 664 Relationships
- 66 Sex and intimacy
- 1.4K Mental health and wellbeing
- 2.3K Talk about your impairment
- 849 Rare, invisible, and undiagnosed conditions
- 894 Neurological impairments and pain
- 2K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 36.2K Talk about your benefits
- 5.6K Employment and Support Allowance (ESA)
- 18.6K PIP, DLA, ADP and AA
- 6.8K Universal Credit (UC)
- 5.2K Benefits and income