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Pip

bat19

Need some advice my daughter is my carer she is moving away from the area for a new house and job which is 25 miles away so I am on standard cares

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poppy123456

What advice would you like?

bat19

I have got Crohn’s disease and thought Crohn’s i have a stoma so i have to have stoma bag on for life and i got osteogenesis a damge left leg thought my last op i have lots of accidents with my stoma bag because i have a high output because my daughter is moving away do I tell dwp and moment I get high rate mobility and standard rate care

poppy123456

You do not need to tell PIP your daughter is moving away because it’s not a change of circumstances that needs to be reported.

bat19

OK thanks for your help poppy

flour

bat19 said:

I have got Crohn’s disease and thought Crohn’s i have a stoma so i have to have stoma bag on for life and i got osteogenesis a damge left leg thought my last op i have lots of accidents with my stoma bag because i have a high output because my daughter is moving away do I tell dwp and moment I get high rate mobility and standard rate care

Hello @bat19 It sounds like it might not always be an easy time for you and with your daughter as well. I agree with @poppy123456 that you don't need to tell the DWP about her moving further away.

But, it may still be worthwhile having a review of your PIP award yourself? I would look at the PIP descriptors and their points and see if you might now be entitled to enhanced rate daily living (care).

By being on standard you must have already scored at least 8 points but need to score 12 or more in total from the 10 activities of daily living (to move up to enhanced). I've linked below a copy of the activities and the points (you get from 0 to 12 points for each of the 10 activities).

https://www.citizensadvice.org.uk/Global/Migrated_Documents/adviceguide/pip-9-table-of-activities-descriptors-and-points.pdf

I'd look beyond just number 5 'toilet and incontinence' and consider whether your osteogenesis damage could also affect you elsewhere such as on number 4 'washing and bathing' (getting in and out of a bath) or number 1 'cooking' (standing or lifting pans in a kitchen) or any other other 7 in daily living.
For each activity you will score some points if you cannot do it repeatedly or safely or in twice the normal amount of time or to an acceptable standard.

Do be mindful that you will need to do a new set of forms and possibly need another assessment. Following that the DWP could increase you to enhanced daily living or leave you on standard or come off it, if they do this it you can appeal which has a very high success rate of around 70%. It could also affect your mobility in the same way.

The extra amount you could get by moving from standard daily living to enhanced daily living would be £134.60 every 4 weeks (£1749 per year).

poppy123456

I wouldn’t advise anyone to report a worsening of condition unless they either fully understand the descriptors or they get some expert advice before doing so.

https://advicelocal.uk/welfare-benefits

Hannah_Alumni

Hello @bat19

Welcome to the community!

Fellow IBD'er and Ostomate here *waves*. I have Ulcerative Colitis and an Ileostomy. I the benefits side of your query has been answered by members, but I was concerned to hear you are struggling with high output and bag leaks. Have you reached out to your stoma nurses? I'd encourage you to do so