Hi Everyone I’m new here 😊 — Scope | Disability forum
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Hi Everyone I’m new here 😊

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debsq72
debsq72 Community member Posts: 7 Listener
Hi Everyone I have been receiving PIP since 2018 when had to retire from nursing at 46 due to ill health.i have had 2 reviews since and have stayed on higher rate mobility and standard care,but lately I’ve required a lot more help torn my rotator cuff just due to arthritis and my local health authority is putting in a wetroom and I’ve had my morphine increased as my health has deteriorated and I’m using a wheelchair when I’m outdoors.So half way into my 5 year award I put in a change of circumstances that was May16th ..text on 8th June to say form had been received but nothing since…does anyone think I’ll be having an assessment?…or do you think they’ll make the decision with all the information I sent or is there still time to get an appointment in the post…it’s got me so stressed out!!!! Many Thanks Deb 

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  • poppy123456
    poppy123456 Community member Posts: 54,189 Disability Gamechanger
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    You will likely need another assessment because most people have them. You could also be waiting quite sometime before you hear anything because there are delays. They've been concentrating on new claims for quite sometime. If an assessment is needed you will be contacted.

    Did you get some expert advice before reporting changes? A worsening of condition doesn't automatically entitle you to more points for a higher award.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • debsq72
    debsq72 Community member Posts: 7 Listener
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    I did send in a lot of paperwork new consultants names/contact details…I’ve had 2 new  health problems to report and I now need so much help from my husband now that my OT has granted me a wetroom (work starts in 3 weeks) I’ve submitted a lot of medical records too…I could walk to the car with my wheeled walker but I’m no longer able to I use my wheelchair 99% of the time.I’ve also had my morphine increased from 4 to 6 times a day.So I had an increase monthly from 600ml to 900ml.I have severe arthritis and it caused my rotator cuff to tear which now results in me getting injections but I’ve Even more restricted mobility.
    Thanks for you help it’s greatly appreciated 😊
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
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    Hello @debsq72

    Welcome to the community! :) Sorry to hear its been such a wait for you! And I am sorry to hear your health has gotten worse. I'm glad to read you have support from your husband :) I hope we can be a support for you in the community too <3
    Hannah - She / Her

    Online Community Coordinator @ Scope

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  • debsq72
    debsq72 Community member Posts: 7 Listener
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    Thank you so much Hannah ♥️
  • poppy123456
    poppy123456 Community member Posts: 54,189 Disability Gamechanger
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    As you've already got the Enhanced mobility award, a worsening of condition will not give you a higher award for this.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • debsq72
    debsq72 Community member Posts: 7 Listener
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    It’s more care that I’m needing now.My husband has to help me shower so my local council is putting in a wetroom everything is in place and work starts next month.My husband helps with bathing now he also has to cook now as I’m unable to stand also I’m unsafe to cook/carry as arthritis has torn my rotator cuff and I can’t hold or carry anything.
    Many Thanks 
    Deb xxxx
  • poppy123456
    poppy123456 Community member Posts: 54,189 Disability Gamechanger
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    What about a perching stool for cooking? They will look at your ability to use an aid before they look at assistance. If an aid can't reasonably be used then they look at assistance. The same applies to all descriptors.

    An aid for bathing such as a chair or bath board?

    Carrying items around the kitchen isn't considered in the preparing a meal activity. This may help give you a little more understanding of the descriptors and what they mean. https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria

    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • debsq72
    debsq72 Community member Posts: 7 Listener
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    I have a perching stool but it’s due to the arthritis in my hands and shoulders I have trouble stirring cooking etc it’s been made Even worse with my rotator cuff tear.I had a bath board but when assessed by my OT they could see we couldn’t manage hence the wetroom , I’m also suffer from incontinence Which I need  help changing 2-3 pad during the night I have just informed PIP of this as it was as much of an issue last time for me but now I’m on medication for it and I get pads from the bladder nurse.
    Many Thanks Deb xx

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