My PIP review done by a website but hmm

bluefox
bluefox Online Community Member Posts: 647 Empowering
I got one of those disability sites to help me with my review form but it’s kind of like very short and sweet and not detailed. 

I don’t know if that’s the right thing to do. Because there’s no fight for more points. 
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Comments

  • chiarieds
    chiarieds Online Community Member Posts: 16,844 Championing
    Yes, the form is much shorter than your initial PIP claim form, but you should still give as much detail as you hopefully did with your first claim. You can add extra pages at the end to explain your answers more fully; were you not advised to do this?
  • OverlyAnxious
    OverlyAnxious Online Community Member Posts: 4,379 Championing
    I'm sure you've been on here long enough to write more effective answers about your own conditions than any website could. :)

    Has it been submitted yet?
  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    chiarieds said:
    Yes, the form is much shorter than your initial PIP claim form, but you should still give as much detail as you hopefully did with your first claim. You can add extra pages at the end to explain your answers more fully; were you not advised to do this?
    No I wasn’t. It’s just short, concise sentences reiterating what was awarded previously and short, concise sentences to explain the symptoms stopping me now. 
  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    I'm sure you've been on here long enough to write more effective answers about your own conditions than any website could. :)

    Has it been submitted yet?
    No, it hasn’t. 
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    bluefox said:
    chiarieds said:
    Yes, the form is much shorter than your initial PIP claim form, but you should still give as much detail as you hopefully did with your first claim. You can add extra pages at the end to explain your answers more fully; were you not advised to do this?
    No I wasn’t. It’s just short, concise sentences reiterating what was awarded previously and short, concise sentences to explain the symptoms stopping me now. 

    You've been given so much advice on here over the last several months, possibly longer about filling out forms and what the best approach is.
  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    bluefox said:
    chiarieds said:
    Yes, the form is much shorter than your initial PIP claim form, but you should still give as much detail as you hopefully did with your first claim. You can add extra pages at the end to explain your answers more fully; were you not advised to do this?
    No I wasn’t. It’s just short, concise sentences reiterating what was awarded previously and short, concise sentences to explain the symptoms stopping me now. 

    You've been given so much advice on here over the last several months, possibly longer about filling out forms and what the best approach is.
    I know but truthfully, I struggle with filling in forms and I’m currently struggling with my conditions to the point I can’t concentrate on the form. So I did admittedly pay for disabilityforms.co.uk to do it and there’s not even any mention of the fact I have ADHD, which is cognitive and last time I was awarded they mentioned I didn’t have a cognitive impairment but I did. 

    I know everyone is saying I told you so. But please just reiterate for me if you can how I add or mention new conditions and maybe I can start again. 
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    I think it's shameful that you paid for this and if it was me i would put in a complaint to the company that you used. 

    If you want to start the form again then you will need to ring PIP to ask them to send you more forms because it's not available to download online. I'd advise you to just add extra sheets with more information as advised by chiarieds above.

    In section 2 of the form it asks about health conditions so you can just add anything they've missed out.
  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    I think it's shameful that you paid for this and if it was me i would put in a complaint to the company that you used. 

    If you want to start the form again then you will need to ring PIP to ask them to send you more forms because it's not available to download online. I'd advise you to just add extra sheets with more information as advised by chiarieds above.

    In section 2 of the form it asks about health conditions so you can just add anything they've missed out.
    I have put a complaint in by e-mail, as you suggested. I just don't have the energy for a phone call at the moment. 

    poppy, can I ask? Is it true they don't listen to a private psychiatric opinion at the DWP despite those same psychiatrists working within an NHS setting?

    the lady on the phone who did my PIP review form also said: what will the DWP do about my new conditions? She said they will just decide what to do when they receive the form etc.


  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    bluefox said:


    poppy, can I ask? Is it true they don't listen to a private psychiatric opinion at the DWP despite those same psychiatrists working within an NHS setting?

    No, not at all. Any evidence you send that's relevant to how your conditions affect you will support your claim, regardless of where it came from.

    bluefox said:

    the lady on the phone who did my PIP review form also said: what will the DWP do about my new conditions? She said they will just decide what to do when they receive the form etc.


    I have no idea what they mean by that. I don't understand why they didn't add all of your health conditions onto the form. Although it's not about a diagnosis, you shouldn't miss out any information.

    I'm sorry but those that charge for such help and have no idea what exactly they need to do or what they are doing, is just so wrong.

  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    bluefox said:


    poppy, can I ask? Is it true they don't listen to a private psychiatric opinion at the DWP despite those same psychiatrists working within an NHS setting?

    No, not at all. Any evidence you send that's relevant to how your conditions affect you will support your claim, regardless of where it came from.

    bluefox said:

    the lady on the phone who did my PIP review form also said: what will the DWP do about my new conditions? She said they will just decide what to do when they receive the form etc.


    I have no idea what they mean by that. I don't understand why they didn't add all of your health conditions onto the form. Although it's not about a diagnosis, you shouldn't miss out any information.

    I'm sorry but those that charge for such help and have no idea what exactly they need to do or what they are doing, is just so wrong.

    They added the diagnoses. 

    But not much information to the conditions.
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    Then add more information by using extra sheets of paper. I know you're finding this whole process difficult but do a little each day and then put it away until the following day. Break it down into parts and tell yourself a little at a time.

    Didn't you have quite a decent extension to return the form? or have i got that wrong?
  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    Then add more information by using extra sheets of paper. I know you're finding this whole process difficult but do a little each day and then put it away until the following day. Break it down into parts and tell yourself a little at a time.

    Didn't you have quite a decent extension to return the form? or have i got that wrong?
    30th September

    Can I ask for more time?
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    No harm is asking. If there's a vulnerable marker on your file then returning the form isn't vital anyway. However, not returning it isn't going to help your review in my opinion.
  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    No harm is asking. If there's a vulnerable marker on your file then returning the form isn't vital anyway. However, not returning it isn't going to help your review in my opinion.
    poppy, can I ask about what you said previously about your daughter and taxis.

    I can't make a journey on my own but in the past I did used to use taxis, door to door and people would have to meet me in a spot.
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    Yes when she was at college she was funded by our LA for a taxi too and from college because she was unable to get there by herself.

    Aren't you unable to undertake any journey the majority of the days because of overwhelming psychological distres? If this still applies then a taxi will be irrelevant. 

  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    edited September 2023
    Yes when she was at college she was funded by our LA for a taxi too and from college because she was unable to get there by herself.

    Aren't you unable to undertake any journey the majority of the days because of overwhelming psychological distres? If this still applies then a taxi will be irrelevant. 

    Currently I’m only leaving the house for medical appointments with a trusted person. 

    And the odd trip when I try to expose myself, which was a suggestion made by the psychiatrist to do this at a slow pace. 

    Should you also put in the PIP form, what points you think you should get?
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    If the majority of the days, you're unable to go out (even with another person) then it would be 10 points for activity 1E. You don't need to tell them where you think you should score points. Just answer the questions on the form. The questions are relevant to the descriptors.
  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    If the majority of the days, you're unable to go out (even with another person) then it would be 10 points for activity 1E. You don't need to tell them where you think you should score points. Just answer the questions on the form. The questions are relevant to the descriptors.
    How about if you could go out more than the majority of the days but because you don’t receive that help, should you score for 1F

    1F can be for psychological distress & seizures?
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    It is possible for someone with OPD and epilepsy to score points for 1F. However, based on all the information you’ve given across many different threads in my opinion 1E should apply, which is what you have now yes? 
  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    It is possible for someone with OPD and epilepsy to score points for 1F. However, based on all the information you’ve given across many different threads in my opinion 1E should apply, which is what you have now yes? 
    Yeah that's correct. The wording fills me with fright. I'm very literal and reading the wording makes me think I can't undertake any journey AT ALL. But to be fair, I do have agoraphobia and I get terrible symptoms when out, so I try to avoid going out at all opportunities.