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Hi, struggling with autistic son and DLA

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red1
red1 Community member Posts: 3 Listener
edited September 2023 in PIP, DLA, and AA
Here to get help as I might need it 
Put in dla for my 13 year old son waiting on a Autism Assessment.. my daughter is 20 and also autistic so I know the struggles is bloody hard work ... so I'm waiting for Dla response 🤔  just keep getting text messages saying still looking at claim. I worry about my son loads as he doesn't eat I going out my mind with this situation....any advice please 🙏 

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  • Jimm_Scope
    Jimm_Scope Posts: 3,610 Disability Gamechanger
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    Hi @red1, I'm sorry you're in such a stressful situation. How long has it been since you sent in the forms? From my knowledge after 3 weeks you should receive a letter about how long the decision will take. I have read in one place that last year it was taking just over 40 days for a decision. I am unsure on wait times just now sorry, but if I can find out I will let you know!

    In regards to your child not eating, I'm afraid I only have anecdotal experience but I know texture can be a large issue for many of my autistic friends. Are they not eating any food at all? Scope has an advice section on eating difficulties in children which include sensory problems Eating difficulties | Disability charity Scope UK

    We also have a section for Support for Parents of disabled children Advice and support | Disability charity Scope UK. Perhaps there's a local support group that you can join for some in-person support? Support groups for parents | Disability charity Scope UK


    I know you've already sent the assessment off but I'm going to link Scope's advice page on the whole process for you incase any of it is potentially useful Disability Living Allowance | Disability charity Scope UK
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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    Opinions are my own, such as mashed potato being bad.
  • Jimm_Scope
    Jimm_Scope Posts: 3,610 Disability Gamechanger
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    Just to inform you, I've also moved this discussion to out PIP and DLA category. Here people will be able to answer your DLA question better :)
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
    Online Community Specialist

    Concerned about another member's safety or wellbeing? Flag your concerns with us. 
    Want to give us feedback? Complete our feedback form now.
    Opinions are my own, such as mashed potato being bad.
  • bg844
    bg844 Community member Posts: 3,887 Disability Gamechanger
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    DLA decisions are taking around 18 weeks from the date they received your form, this date will be on a letter you receive from them. Unfortunately, you are in a queue and all you can do right now is wait. Phoning for updates won't help either (not to mention the long times to get through with people asking the same question).
  • red1
    red1 Community member Posts: 3 Listener
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    Thank you for your help I think it was June time I sent in form its just the waiting I guess and my son's struggles are not getting any easier....and its back to school tomorrow and that's another problem 😱 x 
  • jeanlafont
    jeanlafont Posts: 17 Connected
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    look at money deductions from third partys then ask for double the length of time to repay debt will leave
    you with extra liquid cash to spend on said child will keep stress away for a period.
     
  • poppy123456
    poppy123456 Community member Posts: 57,038 Disability Gamechanger
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    look at money deductions from third partys then ask for double the length of time to repay debt will leave
    you with extra liquid cash to spend on said child will keep stress away for a period.
     
    I think you’ve misunderstood the thread here because there’s no mention of any debt from red1. 

    They are asking about a DLA claim they made for their Autistic son. 
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
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