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Hi, my name is Carlosos!

Carlosos Community member Posts: 37 Connected
New to the site. Mainly looking for help and advice and maybe a place to vent while dealing with pip. 

I was very fit, strong, slim and “healthy” 2 and a half years ago and then became crippled with pains in my abdomen and strange symptoms all over that make daily life very very hard. Well impossible really as I haven’t worked for over 2 years and struggle to even walk at all. I’ve seen a crackers amount of consultants and had so many tests and scans I’m surprised I don’t glow in the dark. My big family and wife keep me going while trying to find a solution to the elusive problem. 

Anyway howdy doo. 


  • Sandy_123
    Sandy_123 Scope Member Posts: 54,156 Disability Gamechanger
    Howdy doo back @Carlosos welcome to the forum. 
    After all those tests, did you get anywhere nearer, of finding out why you were getting your symptoms?  Can be frustrating not knowing. What advise did you want about pip? 
    I'm glad you have support from your wife and family.
  • Carlosos
    Carlosos Community member Posts: 37 Connected
    I get lots of different markers show up or small potential issues but nothing that helps the docs narrow it down. For example inflammation in blood and in small intestine in a small area, high levels (crohns markers) in stool but then disappear next time.  

    It’s all day everyday so those small things they find arnt helping narrow it down at the moment. Onwards and upwards I must persist. 

    I asked a separate question for pip in its area but essentially why have I dwp basically called me a liar? I’ve said I can’t walk and they said in my opinion you can walk but haven’t said why? It’s totally crackers to me. 

  • Rosie_Scope
    Rosie_Scope Posts: 2,911 Scope online community team
    Hi @Carlosos welcome to the community!

    I share your pain on all the tests coming back with odd results, it's not a fun journey to be on at all. 

    The PIP process can be really frustrating too, assessors can be so hit or miss to put it lightly.

    Looks like you've had some good advice from the community so far on your other post, I hope you find us all a friendly and useful bunch! :)
    Rosie (she/her)

    Online Community Coordinator @ Scope

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