advice on managing long term health conditions

Paul79
Paul79 Online Community Member Posts: 9 Connected
in Transport and travel
Hello just looking for some advice on managing long term health conditions I have lBD Crohn's Disease/ Bile acid diarrhoea / congitlal Heart condition and high blood preasure. I still am  having problems with managing my conditions  i still have symptoms i am still  having bowel problems flare ups  . I try to managed by being level headed and managed things one step at a time and deal with things in the moment has best has i can my bowel conditions are very unpredictable and there is a lot of learning and self care . sometime i feel like i.am going round in circles trying to managed with my conditions and i do have problems witn anxiety . I feel their is not a right or wrong way of dealing with my health conditions i just have to work out which works best for me  many thanks for reading 

Comments

  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,863 Championing
    Hello @Paul79

    Welcome to the community! :) I am so sorry to hear your IBD has been flaring for you. 

    I am a fellow IBD'er with Ulcerative Colitis and now a stoma. I would encourage you to reach out to your IBD nurses. If anything, to log the timeline of your flares to help aid with any changes you may have to medications. For support with your symptoms, everyone is different, but GUTS UK and Crohns & Colitis UK have some fantastic resources on their websites. 

    Personally, I found limiting dairy helps. Mindfulness helps with the anxiety and stress. And I also found planning my day and journey's helps. As I always make sure I have a contingency plan and know where all the toilets on route are. 

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