Hi, my name is Alfieace_14! — Scope | Disability forum
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Hi, my name is Alfieace_14!

Alfieace_14 Community member Posts: 2 Listener
Hi I have a lot of healt issues cauda equina syndrome  foraminal stenosis haemolytic anaemia osteoarthritis in a number of places I've been unwell for a long time I am also double incontinent due to my cauda equina syndrome I also have a pineal gland cyst in my brain I was informed I had to have an assessment for claiming my esa which surprised me as was told I wouldn't need reassessment due to nature of my illnesses anyway I waited for my telephone assessment which was stressful enough to then be told she couldn't do the assessment due to me having this pineal gland cyst in my brain she wasn't qualified to assess me because of that so was told I needed to be seen in person by a Dr as if my stress levels weren't high enough dies anyone have any input on this as I'm baffled stressed and very upset by all if this they have my medical summary all of the evidence yet still I'm being put through this having to prove my medical evidence is true tia


  • Alfieace_14
    Alfieace_14 Community member Posts: 2 Listener
    I also have copd I'm like a walking medical dictionary so I apologise in advance I don't have a exciting fun life it's hard as I struggle to walk and my breathing isn't great due to the copd and haemolytic anaemia which I acquired and have had chemotherapy for that in itself was hard but this assessment is the icing on the cake for me
  • Ada
    Ada Scope Member Posts: 4,063 Pioneering
    Alfieace_14 I am sorry your suffering so much you poor thing. Your amongst friends here who all suffer but support each other so very much. 
    Hope to see you around the coffee lounge. Hugs 🤗 
  • poppy123456
    poppy123456 Community member Posts: 49,770 Disability Gamechanger
    When going through the work capability assessment sometimes certain health conditions mean you need a Doctor to assess you, though it's quite rare for this to happen. I have heard a few people on here needing the same in the past.

    Hopefully you won't be waiting too long for another appointment.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Albus_Scope
    Albus_Scope Posts: 1,496 Scope online community team
    Hey there @Alfieace_14 and welcome to the community!
    I'm sorry to hear you're having to go through more assessments, but I just wanted to say hi and if you fancied taking your mind off things, as Ada said, you're more than welcome to come and chat over in the Coffee Lounge
    Albus (he/him)

    Online Community Coordinator @ Scope

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  • Ada
    Ada Scope Member Posts: 4,063 Pioneering
    Oops sorry @poppy123456 I mentioned you. I only just read that bit at your bottom. I won’t do it again. It’s only been because I think you’re amazing x


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