If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Disability and having and caring for a child
Options
12345
Community member Posts: 5 Listener
Has anyone found their disability has stopped them from having and caring for a child?
I have M.E so am limited as to how much I can do by exhaustion.
I have M.E so am limited as to how much I can do by exhaustion.
Comments
-
Yes, ME is one of my conditions there is absolutely no way I could meet the needs of a child.
I know my own health and I've seen enough from my friends and relatives raising children to know this.
One had twins. Another a baby who NEVER slept during the day. Another two small children who have a condition requiring emergency hospital stays and lots of visits to outpatients.
My estimate is I'd end up bedbound within a few weeks needing care myself, once a baby had been born.
I mean I've recently concluded most of the time I'm medically unfit to drive! So have given up looking to learn.
I went through a 10 day period of vastly increased activity a few months ago, because it was necessary not because I was particularly capable. Towards the end it was SO hard to keep going. The fatigue was horrendous. IBS kept flaring because I was eating out of my routine.
Had the situation not ended when it did I would have had to stop. Even though there was no one else able to help my parent.
It took my ME and pain levels 6 weeks to recover back to normal and I was doing less activity during that time. -
I brought up 2 children on top of a psychiatric condition. It has been extremely challenging. Also it attracted attention from Children's Services and they just added to the stress rather than helped. I was constantly paranoid about the state of the house and their random visits. They didn't have the resources to genuinely help.
However they have turned into lovely young people and I have done my upmost best. I wouldn't change them for the world and would do it all again. -
Becoming and being a parent is never easy be we 100% fit and well or disabled, my eldest is almost 40 and still a worry on a daily basis.2024 The year of the general election...the time for change is coming 💡
-
I struggled to find an understanding partner as you can't see M.E, Ptsd and a head injury. People only see you when rested up. They didnt understand thyroid medication for energy. They saw it as a bad thing to be on medication at a young age.
-
Hello @12345
Welcome to the community! Can I ask, do you have a specialist for your M.E that you can speak to? I have IBD and felt the same reservations about having children and raising them. My specialist was able to put me in touch with a local IBD group who have been such a support. I thought that may know of one for you locally for M.E?Hannah - She / Her
Online Community Coordinator @ Scope
Concerned about another member's safety or wellbeing? Flag your concerns with us.
Want to give us feedback? Complete our feedback form now. -
I have been through the M.E specialist clinic several times. There isn't a cure yet as not enough research into it. All the clinic can suggest to manage is rest. Ive been with a local support group which arnt able to help me.
-
Sorry to hear they were not able to help you. I do hope you find more support here in the communityHannah - She / Her
Online Community Coordinator @ Scope
Concerned about another member's safety or wellbeing? Flag your concerns with us.
Want to give us feedback? Complete our feedback form now.
Brightness
Categories
- All Categories
- 13.1K Start here and say hello!
- 6.7K Coffee lounge
- 70 Games lounge
- 386 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 771 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 590 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 739 Transport and travel
- 31.8K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.2K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 871 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 819 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.