How is your day going?

1…597598600602603…654

Comments

  • Jimm_Scope
    Jimm_Scope Posts: 5,293 Online Community Team

    It finally stopped raining here. I'm glad I live on a hill because I'd really be concerned with flooding given the amount of rain

  • Sandy_123
    Sandy_123 Scope Member Posts: 58,668 Championing

    Yes the sun came out for a bit too

  • rubin16
    rubin16 Community member, Scope Member Posts: 852 Championing

    Hey everyone, not long been back from the hospital. I had a bad reaction to infliximab, I went all hot and flush, felt sick and couldn't breathe as soon as they started giving it to me so had to stop it and be put on oxygen for a few hours. I'm okay now but can't have infliximab anymore so not sure what the options are.

    Hope your all having a good day

  • Sandy_123
    Sandy_123 Scope Member Posts: 58,668 Championing

    Oh no @rubin16 I'm glad your ok now, must of been scary at the time

  • Marydoll5
    Marydoll5 Community member Posts: 581 Championing

    Hi everyone

    @Teigr that means a lot thank you. Also @Nightcity I empathise with you. Be kind to yourself and I hope the feelings pass soon.

    I reckon with the help of @Jimm_Scope I know what's wrong. I went off my mood stabiliser in June cold turkey and with no medical advice in desperation.

    I think I have been on a manic high for months wrongly thinking I felt better. I now have crashed to a bad low a few weeks ago and anxiety went off the scale.

    I started them again last night and slept a bit. By the time I see the new cpn on 21st October maybe I will get the med review and some help.

    I can't believe I didn't realise or even stopped meds. I'm sorry I did it.

    Hope you all stick with me to recover..and I think about you all and send good wishes to you 😊

  • Marydoll5
    Marydoll5 Community member Posts: 581 Championing

    @rubin16 I missed your post. I'm sorry you had a bad reaction and that there's something else they can give you. You have been through so much

  • Sandy_123
    Sandy_123 Scope Member Posts: 58,668 Championing

    @Marydoll5 hopefully once your meds get into your system again you will start feeling better

  • Nightcity
    Nightcity Community member Posts: 2,367 Championing

    thanks @Marydoll5

    Glad you seem to be on the right path to getting better ,hopefully the meds will get back to doing their job soon.

  • chiarieds
    chiarieds Community member Posts: 16,566 Championing

    Hi everyone,

    Oh @Marydoll5 - I'm so sorry you've been so unwell. I do hope you managed to enjoy your holiday a little. We all want to hear from you however you're feeling, so please don't let that ever stop you again 😊 Hoping things soon improve.

    @rubin16 - I've been hoping you would be well enough to get your infusion today. but what an awful experience you must have gone through. Thank goodness you're OK now, but what a shame you can't have Infliximab ever again. I hope there's something else that will effectively help.

    Hope you're doing a tad better @Nightcity - when you don't get enough sleep it can really get to you, so hoping you get a decent sleep tonight.

  • Marydoll5
    Marydoll5 Community member Posts: 581 Championing

    @chiarieds thank you. I did unwind a bit on holiday but dreaded the mess and clutter I was coming back to!

    I'll say good night and have a good evening friends.

  • Amberpearl
    Amberpearl Community member Posts: 1,528 Championing

    Well my 3rd daughter is pregnant again lol

    That's all 3

    Well eldest gave birth 13 weeks premature, was due 3 Dec. Was born 6 September. Still in hospital until December but now 3lb 2oz

    My other 2 daughters due February and April

    Wow like one after the other

  • rubin16
    rubin16 Community member, Scope Member Posts: 852 Championing

    Thanks everyone for your comments, hoping I can start something else as I think there is only 1 last drug I can take for it which is ustekinumab, as I have tried everything else now. Just going to wait till they discuss me with the team and get back to me. It was a scary experience though I thought I was going to die, but managed to have a laugh with the nurses afterwards and they were brilliant at looking after me. They kept me there for 5 hours to make sure I was okay to go home.

    @Marydoll5 really hoping you manage to feel better, you are a lovely person and its always great hearing from you. I wish you all the best for your CPN appoinment and hopefully get meds that balance things out for you.

    Thanks @chiarieds and @Sandy_123 hope you both have a good restful evening.

  • Sandy_123
    Sandy_123 Scope Member Posts: 58,668 Championing

    @Amberpearl that is good news hope your granddaughter is doing well in hospital

  • Nightcity
    Nightcity Community member Posts: 2,367 Championing
    https://forum.scope.org.uk/discussion/comment/917092#Comment_917092

    Thank you. I'm ok now, yes hopefully a more successful night!

    thanks for caring and hope you also have a restful night.

  • chiarieds
    chiarieds Community member Posts: 16,566 Championing

    Thank you too @Nightcity - I had a poor night last night due to waking up many times in pain 😣so hoping for a better one tonight. I value the help you give on the forum; it's much appreciated, you have indeed become a valued member here.

  • Sandy_123
    Sandy_123 Scope Member Posts: 58,668 Championing

    Morning everyone

    Hope you feel better today @chiarieds

  • Teigr
    Teigr Community member Posts: 4,539 Championing

    Morning all.

    Dry,sunny and freezing here.

  • Teigr
    Teigr Community member Posts: 4,539 Championing
    https://forum.scope.org.uk/discussion/comment/917099#Comment_917099

    Like buses.

  • Jimm_Scope
    Jimm_Scope Posts: 5,293 Online Community Team

    Morning everyone, very sleepy today. Did not get a great sleep last night, I have a safety inspection for the electrics later too.

  • Nightcity
    Nightcity Community member Posts: 2,367 Championing

    morning lovelies.

    sunshine and showers, gor a hyperactive pug to walk now.

    hope you're all ok today. 💛💜

    @chiarieds that's lovely thank you!

    @Jimm_Scope I hear you, what an inconvenience you can do without! hope you get an hour in somewhere.

    @Amberpearl Blimey that's a busy time for you.

Categories