Hi, my name is boltonwanderer! — Scope | Disability forum
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Hi, my name is boltonwanderer!

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boltonwanderer
boltonwanderer Community member Posts: 6 Listener
Hi there, I’m Sandy and am presently living in Spain. I’m moving back to Uk in the near future and will be living near Gloucester to be near family. I contracted polio in 1954 at the age of 12. I’m really with PPS and would like to hear of other people’s experiences.

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  • Sandy_123
    Sandy_123 Scope Member Posts: 50,332 Disability Gamechanger
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    Hi @boltonwanderer great name, welcome to the forum. Good luck with your move back to the UK. 
    I don't have the same conditions but other members might be able to share experiences with you. But join in with the conversations.
  • Jimm_Scope
    Jimm_Scope Posts: 2,705 Scope online community team
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    Hi @boltonwanderer! Welcome to our community :) I see you've already met another Sandy! 

    I know Post-polio syndrome still isn't fully understood, if you feel up to it you can share how it affects you here. Sharing the experiences of our different conditions and disabilities helps with our mutual understanding of each other I find!

    About returning to the UK, how long have you lived in Spain for? Also are you above or below the Pension age? This can change which benefits you can be eligible for when in the UK.
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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  • boltonwanderer
    boltonwanderer Community member Posts: 6 Listener
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    Hi thanks for accepting me into your group. I had polio when I was 12 and m now 81. I have numerous pronle related to PPS. I will be leaving Spain within the next 3 months. The doctors  here have never heard of PPS but I had to see a specialist last week and he actually acknowledged the fact that problems are related to PPS.
  • boltonwanderer
    boltonwanderer Community member Posts: 6 Listener
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    Hi there, I’ve been living full time in Spain for 22 years this year. We actually first came to Torrevieja in 1997 but used to commute between there and Gloucester but 2002 we decided to move full time and now live in Arboleas, a little village in the Almeria province. We've decided to move back as I’m really suffering from PPS. plus we are not on a bus route so have to drive everywhere. My husband has had cancer as well and suffering the after effects of the chemo and radio therapy. Well that’s enough of us. I’m quite looking forward to moving back and living near our family. They used to come out to visit quite often but now the grandchildren have grown up not so much. Looking forward to chatting some more. Yes we are pensioners, we are both in our eighties but Spain has kept us young at heart.
  • Jimm_Scope
    Jimm_Scope Posts: 2,705 Scope online community team
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    Hey @boltonwanderer, when you move back to the UK you should register with a GP as soon as possible. It should help you start the process of seeing a specialist in the UK. 

    Do you have any money concerns at all? From the sounds of it you would eventually be eligible for Attendance Allowance, however this is only available if you have spent at least 2 of the previous 3 years living the UK.
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
    Online Community Specialist

    Concerned about another member's safety or wellbeing? Flag your concerns with us. 
    Want to give us feedback? Complete our feedback form now.
    Opinions are my own, such as mashed potato being bad.
  • boltonwanderer
    boltonwanderer Community member Posts: 6 Listener
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    Hi there, thanks for your reply and concern. We don’t have any problems money wise but we will contact a doctor asap.
    Sandy 
  • boltonwanderer
    boltonwanderer Community member Posts: 6 Listener
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    is there anyone else on here who is suffering from Post polio syndrome? It will be interesting to find out how other people are coping.
  • chiarieds
    chiarieds Community member Posts: 16,103 Disability Gamechanger
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    Hi @boltonwanderer - & a belated welcome from myself. I've had a look, & do believe one of our members has mentioned PPS. I'm hoping he'll see this tag as he was about just a few days ago. Hi @exdvr - hope you may be able to chat to one of our new members about PPS, thank you.
    There's also a little bit of info on this NHS site, together with a link to the British Polio Fellowship: https://www.nhs.uk/conditions/post-polio-syndrome/

  • boltonwanderer
    boltonwanderer Community member Posts: 6 Listener
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    Hi Chiarieds, thanks for that, I will keep my eyes open and look forward to hearing from anyone in the same position as me. It would be good to hear from anyone. I was under the impression when I joined this group that it was all about PPS. It seems a very interesting and informative group. 

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