Hi, my name is EdBot79! — Scope | Disability forum
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Hi, my name is EdBot79!

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EdBot79
EdBot79 Community member Posts: 8 Listener
Hi all, just popping in to say hello. 

Been diagnosed with autism and adhd in the last few years so learning more about disabled rights and the Equality Act. 

Now I'm facing recovery from surgery and the possibility of long term effects on mobility so figured this is the place to ask questions  😁

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  • Ada
    Ada Scope Member Posts: 14,200 Disability Gamechanger
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    I just want to say hello and it’s a very warm welcome from me 
  • Beaver79
    Beaver79 Community member, Community Co-Production Group, Scope Member Posts: 20,210 Disability Gamechanger
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    Hi @EdBot79 Welcome to the Community. Have a look around and join in when you are ready. If you have any questions please ask. Take care.
  • Jimm_Scope
    Jimm_Scope Posts: 2,705 Scope online community team
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    Hi @EdBot79, welcome to the community :) We have a lot of members who are neurodivergent here! I have ADHD myself. How is the recovery from the surgery going?
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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  • EdBot79
    EdBot79 Community member Posts: 8 Listener
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    Hi @Jimm_Scope im really struggling to be honest. The initial relief from the excruciating pain was wonderful but I seem to have plateaued and now am finding things harder again. Its frustrating. 
  • Jimm_Scope
    Jimm_Scope Posts: 2,705 Scope online community team
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    Have you spoken to the team who were supporting any aftercare or your GP @EdBot79? If there's anything they can give to help. Any idea of how long is the recovery expected to take? I wonder if there's a possibility of looking for a temporary carer or something similar...
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
    Online Community Specialist

    Concerned about another member's safety or wellbeing? Flag your concerns with us. 
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    Opinions are my own, such as mashed potato being bad.
  • EdBot79
    EdBot79 Community member Posts: 8 Listener
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    Unfortunately my GP surgery are hopeless, it was their lack of knowledge that put me in this situation. I'm not due for a follow up at the hospital with the team who did the surgery until March,  I feel rather left to my own devices. The information I've had has been very vague - recovery could take up to 2-3 years but as every patient is affected differently this is difficult to clarify. 
  • Jimm_Scope
    Jimm_Scope Posts: 2,705 Scope online community team
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    I'm sorry @EdBot79, I know that's a fairly common occurrence around the country just now. Is there anyway to contact the team who did the surgery to let them know you are struggling? I wonder if it's like my IBD team, they normally only follow up every 6 months but I can contact them if things are getting worse.
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
    Online Community Specialist

    Concerned about another member's safety or wellbeing? Flag your concerns with us. 
    Want to give us feedback? Complete our feedback form now.
    Opinions are my own, such as mashed potato being bad.

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