Hi, my name is EdBot79!

EdBot79
EdBot79 Online Community Member Posts: 8 Listener
in Start here and say hello!
Hi all, just popping in to say hello. 

Been diagnosed with autism and adhd in the last few years so learning more about disabled rights and the Equality Act. 

Now I'm facing recovery from surgery and the possibility of long term effects on mobility so figured this is the place to ask questions  😁

Comments

  • Jimm_Scope
    Jimm_Scope Posts: 5,703 Scope Online Community Specialist
    Hi @EdBot79, welcome to the community :) We have a lot of members who are neurodivergent here! I have ADHD myself. How is the recovery from the surgery going?
  • EdBot79
    EdBot79 Online Community Member Posts: 8 Listener
    Hi @Jimm_Scope im really struggling to be honest. The initial relief from the excruciating pain was wonderful but I seem to have plateaued and now am finding things harder again. Its frustrating. 
  • Jimm_Scope
    Jimm_Scope Posts: 5,703 Scope Online Community Specialist
    Have you spoken to the team who were supporting any aftercare or your GP @EdBot79? If there's anything they can give to help. Any idea of how long is the recovery expected to take? I wonder if there's a possibility of looking for a temporary carer or something similar...
  • EdBot79
    EdBot79 Online Community Member Posts: 8 Listener
    Unfortunately my GP surgery are hopeless, it was their lack of knowledge that put me in this situation. I'm not due for a follow up at the hospital with the team who did the surgery until March,  I feel rather left to my own devices. The information I've had has been very vague - recovery could take up to 2-3 years but as every patient is affected differently this is difficult to clarify. 
  • Jimm_Scope
    Jimm_Scope Posts: 5,703 Scope Online Community Specialist
    I'm sorry @EdBot79, I know that's a fairly common occurrence around the country just now. Is there anyway to contact the team who did the surgery to let them know you are struggling? I wonder if it's like my IBD team, they normally only follow up every 6 months but I can contact them if things are getting worse.

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