PIP extended while still waiting for them to complete review. Just annoying how long they take — Scope | Disability forum
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PIP extended while still waiting for them to complete review. Just annoying how long they take

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ChrisSCOPEhtfc94
ChrisSCOPEhtfc94 Community member Posts: 84 Connected
I’m happy that they’ve extended it, award only went up to a date next month (March 2024). They’ve added an extra year - March 2025. They have to do that anyway so it clears any uncertainty about payments. You’re still getting paid but it’s just so annoying how long it takes to get it done. The system, it doesn’t work. It just doesn’t. It’s like they can ask you every 4 years are you still the same, have you got better when you know haven’t got better. Then they take a ridiculous time to get round to looking at it. It’s bonkers, it’s pathetic. 

I better get a longer time duration award whenever they get it done. 8, 9 or even 10 years I’m looking at, a major improvement on the 4 years they gave last time. Hopefully the same rates as well - enhanced and enhanced. Autism doesn’t get better, it just doesn’t, as many other conditions don’t. You can’t wave a magic wand and it’s gone/got better. You can’t wake up one day and it’s gone/got better.

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  • ChrisSCOPEhtfc94
    ChrisSCOPEhtfc94 Community member Posts: 84 Connected
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    They’ve had my stuff back with them (form and a care plan) since May last year, so 9 months. 🙄🙄
  • ChrisSCOPEhtfc94
    ChrisSCOPEhtfc94 Community member Posts: 84 Connected
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    Hopefully there won’t be any need for a telephone ☎️ consultation or a face to face 🗣️ consultation, none of that happened last time. It was just a paper based review. Hopefully the same again, that stuff that was sent back (form + care plan) was very good.
  • Albus_Scope
    Albus_Scope Posts: 4,081 Scope online community team
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    Hey @ChrisSCOPEhtfc94, I can totally empathise. I've been waiting since Feb 2023 for my review and have only just been told it's extended to March 2025 now.  It's so frustrating having to repeatedly explain that autism doesn't go away. I really think they need to address this massive failure. 

     I was very close to just writing "Still autistic" in each box.  :D 
    Albus (he/him)

    Online Community Coordinator @ Scope

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    Neurodivergent.
  • ChrisSCOPEhtfc94
    ChrisSCOPEhtfc94 Community member Posts: 84 Connected
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    Albus_Scope said:
    Hey @ChrisSCOPEhtfc94, I can totally empathise. I've been waiting since Feb 2023 for my review and have only just been told it's extended to March 2025 now.  It's so frustrating having to repeatedly explain that autism doesn't go away. I really think they need to address this massive failure. 

     I was very close to just writing "Still autistic" in each box.  :D 
    @Albus_Scope, your post I absolutely agree with. It’s terrible that they can’t get it into their heads that a lot of us just don’t get better. It’s a lifelong condition, with no cure. I’ll still be the same in 10 years but that would be the best outcome in my opinion. My mother is convinced I’ll get that. It just depends on whoever looks at my stuff, the assessor. They’ve never met me, spoken to me. They better be understanding and kind. These assessors need to use their judgment correctly. 
  • ChrisSCOPEhtfc94
    ChrisSCOPEhtfc94 Community member Posts: 84 Connected
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    Albus_Scope said:
    Hey @ChrisSCOPEhtfc94, I can totally empathise. I've been waiting since Feb 2023 for my review and have only just been told it's extended to March 2025 now.  It's so frustrating having to repeatedly explain that autism doesn't go away. I really think they need to address this massive failure. 

     I was very close to just writing "Still autistic" in each box.  :D 
    @Albus_Scope, your post I absolutely agree with. It’s terrible that they can’t get it into their heads that a lot of us just don’t get better. It’s a lifelong condition, with no cure. I’ll still be the same in 10 years but that would be the best outcome in my opinion. My mother is convinced I’ll get that. It just depends on whoever looks at my stuff, the assessor. They’ve never met me, spoken to me. They better be understanding and kind. These assessors need to use their judgment correctly. 
    @Albus_Scope she is very convinced, my mum, that I’ll get the 10-year ongoing award. She might well be right. I’ll still be the same in 10 years but that’d be the best possible outcome from this. 10 years, you’ll probably know that’s as close as it gets to an indefinite award.
  • Albus_Scope
    Albus_Scope Posts: 4,081 Scope online community team
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    I'm keeping my fingers crossed you get the 10 year reward @ChrisSCOPEhtfc94, it seems very unfair and a huge waste of resources to keep giving people with life long conditions to get assessed every 4 years.  Here's hoping for some change in the future!
    Albus (he/him)

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
    Opinions expressed are solely my own.
    Neurodivergent.
  • Nashota
    Nashota Community member Posts: 71 Courageous
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    I never understand why they assess people with certain conditions over and over.

    I think I could be autistic but the GP I spoke to about it dumped my mental health conditions onto the trauma that I'd endured as a child and adult. I might speak to a different GP about it.
  • woodbine
    woodbine Community member Posts: 11,639 Disability Gamechanger
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    Reviews are taking up to and sometimes longer than a year as they give priority to new claims rightly or wrongly, the good news being that whilst reviews are done existing awards stay in place.
    2024 The year of the general election...the time for change is coming 💡

  • ChrisSCOPEhtfc94
    ChrisSCOPEhtfc94 Community member Posts: 84 Connected
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    No wonder it takes so flaming long for reviews to take long - 440,000 reviews were outstanding in December last year. They won’t have enough assessors/case managers to deal with the sheer numbers 🙄. 

    It sounds like they do want to give people with the highest needs 10-year ongoing awards as a way of dealing with reviews more efficiently. I would personally put myself that category, needing the maximum 10-year award. Hopefully that’ll be the case doe me. Yeah, you’re still getting paid and not missing out on any money until it’s completed, but I’m afraid it’s easier said than done to just get thoughts of your outstanding review our of your head. The wait, the worry that you can’t rule out them making a wrong decision (picking the wrong rates/getting no rates, getting the length of time of the award wrong), them doing a telephone assessment or face to face assessment. It all still gets to you despite still getting payments.

    You can never completely rule out something going wrong, but it should be a favourable outcome, the best outcome possible. What was sent back was very convincing.
  • ChrisSCOPEhtfc94
    ChrisSCOPEhtfc94 Community member Posts: 84 Connected
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    I think I’ve seen that over 700 people were working on the reviews as of December, that’s not a lot 🙄, 440,000 outstanding reviews in December last year and only 700+ employees to deal with that backlog. Not good. 

    Again, I know it’s good to know that you’re still getting paid while you’re still waiting, but it’s easier said than done to just eliminate thoughts from your head to do with your outstanding review. 
  • MaaniMike
    MaaniMike Community member Posts: 20 Courageous
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    Hi,

    Similar to many here it's almost a year since my review forms was received and it can be very frustrating as I have experienced however I think it's very important you consider the challenges they face not just with new claims, but reviews, MRs and tribunals.

    I fully agree there are significant shortcomings and majority seems to be down to poor assessments. The issue here is they have tried to recruit more assessors and it's not clear how they will perform until they've done the job. And when done poorly it takes time to retrain and recruit better staff.

    As for conditions, the issue we all seem to forget is the same illnesses disabilities affect people so differently they can't just use a blanket approach. Even lifelong conditions like the ones mentioned in this post there are occasions where people stabilise or find improved ways of functioning.

    Just as two examples in our office we recently have a gentleman who has been autistic and many other mental health illnesses for over 20 years. After a new support program and medication, he is now absolutely thriving and has had his pip reduced but is so happy to be able to work and find something to enjoy.

    Seperately we have a lady who is wheelchair bound, double amputee and has restricted use of her right arm. Now she works in an admin role with use of some clever IT and is doing fantastic and has a new lease of life having been born with severe disabilities.

    These might be two unique examples but what each person is capable of varies so vastly between two persons with identical ailments that it somewhat but not always justifies the need for reviews.

    I might be over rationale here but have found for peace of mind rather than be angry and frustrated, find logic where possible as helps me deal with it a whole lot better.

    I'll admit there are days and weeks this positive thinking goes out the. Window and I get so angry and upset like many here. But increasingly I find it easier to deal with by thinking like this and convincing myself when things go wrong I'm not to blame and just need to do more to satisfy the criteria. Again I know it's unfair but just my way of managing the mental strain of this process.

Brightness

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