Sudden incremental reductions in brightness levels while everything else remains normal. — Scope | Disability forum
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Sudden incremental reductions in brightness levels while everything else remains normal.

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YorkshireMan
YorkshireMan Community member Posts: 2 Listener
Hello,

For many years now, I have sudden events every few months to every few years that suddenly reduce my brightness levels in both eyes at the same time by a small amount, while leaving everything else (visual acuity, colour perception, etc) working normally without any change. The pattern is that there is one distinct event every few years, followed by a series of smaller events in the following months before it stabilises again.

This new brightness level becomes the new permanent brightness level. There is also strong tiredness for a few days after an event. There is no change in my behaviour or activity/eating patterns before one of these event sequences start.

Hospital eye clinics and neurology doctors cannot find a reason. There is nothing obvious in the eyes themselves. VEP tests have not revealed anything. I am due for another MRI but previous MRIs have not found anything.

Things like going outside while pupils are dilated used to be painful, but that has not been true for years.

Has anyone ever seen anything like this before, with just a sudden change in brightness levels in both eyes at the same time (usually overnight while sleeping) without any other detectable changes ? If so, was there a confirmed diagnosis made ?

I am looking for viable suggestions I can run past the doctors in case there is something rare they have not considered, so thanks for any hints or suggestions.

Given the lack of noticable structural changes, I am now wondering if this might be some brain processing or neurotransmitter problem, but I am mostly healthy in other respects, and do things like long day walks (10-15 miles) several times a month without any problems.

Comments

  • YorkshireMan
    YorkshireMan Community member Posts: 2 Listener
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    The comment about dilated pupils is confusing - sorry. What I meant to say is that at my original brightness levels, dilated pupils were painful outside, just like they are for everyone else. However, at the current reduced brightness levels, I no longer feel the same pain when outside with dilated pupils.
    BTW, is this the correct section to be discussing this ? Would it be better in the Sensory section ? Also, does anyone know of any more specialist reputable forums where I might get some ideas about suggestions to put to the doctors ?
    Thanks.
  • Albus_Scope
    Albus_Scope Posts: 4,081 Scope online community team
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    Hi @YorkshireMan and welcome to the community. :)

    Please don't worry about which category your post is in, sometimes conditions span multiple categories. :) 
    I'm afraid I've not heard of anything like you've described, but I really hope something shows up on your next MRI. I'm hoping one of our regulars may be able to offer some advice soon. 
    Albus (he/him)

    Online Community Coordinator @ Scope

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