Kidney Disease Stage 3a — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Kidney Disease Stage 3a

Options
lookingadvice
lookingadvice Community member Posts: 2 Listener
Hi all looking advice. I have CKD3 and I found this out from my gynaecologist who had my records. My own GP didn't tell me this. I have spoke to my doctor over last 3 years with symptoms I'm noticing but as my last bloods showed I'm stable at 51 GFR. I got in touch with a charity and they said I need a dietician and possibly a nephrologist. However I took this info to my doctor and she said She won't be referring me at this point because there is no need. I'm feeling unheard and unsure what to do as I am getting conflcting information. I am 49 and have 3 kids at home so I need to be at my best health. Any advice welcome

Comments

  • chiarieds
    chiarieds Community member Posts: 16,103 Disability Gamechanger
    Options
    Hi @lookingadvice - & welcome to the forum. I have had some concerns about this myself in the past, so appreciate where you're coming from. The first time I had a poor blood test I'd been sick for several days in the previous week, so had the blood test repeated a couple of weeks later. All this made sense to me, & tho I normally drink plenty of water, had been dehydrated due to vomiting.
    So, well worth asking for a repeat eGFR initially. We can't give medical advice, & you need to be guided by your GP, but you can voice your concerns nonetheless, & ask for an explanation. Sometimes they'll just keep an eye on things due to your results, but you should always feel you're completely kept in the loop too.....you & your GP are part of a team, & need to work together.
    Yes, keeping well hydrated as well as looking at a healthy diet are both important, but if you don't feel your current GP is listening to you, can you see another in the practice?
    As far as I'm aware your problems would be considered mild-moderate, but that's not to say your concerns shouldn't be addressed by your GP & any appropriate advice given. Wishing you well.

  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
    Options
    Hello @lookingadvice

    Welcome to the community. I am so sorry you had to find out that way and you are not getting any support from your GP. Is your practice one with different GPs under it? I wonder if booking to see someone else could help get better communication in a plan for you. 
    Hannah - She / Her

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.

Brightness

Complete our feedback form and tell us how we can make the community better.