We want another Minister for the Disabled?

onebigvoice

I hope this link plays, as its well worth a listen for those who don't believe we need someone to speak for us in PARLIAMENT.

https://twitter.com/i/status/1735762878542598578

  iTS 1.27 minutes long and give me your views after.

I won't comment until its been watched by those that doubt.

MW123

@Woodbine Based on my analysis of the link I listened to, the central argument raises concerns from my perspective about whether this party genuinely champions the causes of the working class. You are correct that the discussion did not touch upon the representation or concerns of people with disabilities in this specific context. However, my anxiety is not only limited to the working class but also extends to the question of whether individuals with disabilities can trust that their interests will be adequately addressed by this party.

MW123

@Woodbine

Woodbine, I have no affiliation to any party. I look forward to reading your posts in the coming months as I believe you have some very persuasive views.

onebigvoice

@woodbine, @MW123.  My point exactly.  He was asked a simple question, and that is what you got.  People who were elected to a job to look after our concerns in parliament are being paid big money yet where do we see the results.
  Have the government sorted out the waiting lists and mobilised those Nightingale Hospitals since they were sterile units that could be used?  In Cardiff 300 and 200 bed units were built yet not one single bed was used for the Pandemic?  The 10 BEDS IN ONE UNIT WERE USED WHILE THEY PAINTED THE CRI, I believe that the last time it was painted was around 1955.  Do you really have anyone that speaks out for us?  Do we have the ear of anyone not from this or other sites like this but GOVERNMENT DEPARTMENTS that are being paid to the job of assessing but due to someones idea of what they can do, has changed the Social Care Assessment to the need for access to financial support.
  Who is your Chief Medical Officer?  Have they been to the government to say get my people back to work, its not as though you don't know why they are on strike?
  List the things that need changing (one list from the government and one from the NHS) Its not all about money, but now it has been since the government now believes that by changing the contract of employment and adding more skills to the same basic wage will reduce waiting times?  Or by sub-contracting out work it would bring in the "extra" skills needed to get the waiting lists down.
  Think about this then: If these subcontractors were so skilled at the jobs they do then where were they when the GOVERNMENT ASKED all retired or skilled Doctors and Nurses to make them selves available but the "medical Board" actually rejected some because they were in the vunerable catagory, whether by age or illnesses they had.  But what about the assessors that continued to work?  How many were seconded to help in these Nightingale Hospitals?  Do you know of any?  I don't, it seems that they were not skilled enough for that maybe?  If you want accountability and you want to pay people their worth, then the government would have been around the table until this was sorted.
  They not around the table because of troubles else where, well lets start with leaving the EU?  Where are we with that?  GET, our NHS back to work, and yes I said OUR, because the fundimental reason seems to be lost "run for the people FREE at source"

Jimm_Scope

I will mention, the person in the video linked is the Leader of the Opposition and has never been in government yet. The current government has downgraded the Minister for Disabled People portfolio. From what I remember at the time the Labour Shadow Minister for the Disabled complained about the downgrading at the time.

onebigvoice

@jimm_scope.  Why would you down grade the Health Ministers Portfolio whern the NHS is in so much trouble?
  The use of contractors are to assist in getting the queues down.
  Look at this mornings news:  The use of support (doctors) staff at surgeries lead to 2 diagnosis's and the patient died, if they went to A & E they would still be here.  They were considered as appropriately see.  I am not demeaning what they do in any way but where was the need to have a second opinion from the doctor that already sees them? 

Jimm_Scope

I only brought it up because the question was about why there was no Minister for the Disabled anymore and the video was of Kier Starmer, when it was Sunak's decision to demote the position. I wanted to try and clear up any possible confusion sorry!

Penybont

why the current mone has done nothing for disabled people. people in this country do not care about disabled people they made that clear when the voted tory in to power.

onebigvoice

My friends daughter was diagnosed by Capita giving her Enhanced rates for both Care and Mobility, the car was picked up 7 weeks ago.

Two weeks ago Capita decided to reassess her and took it all back off her stating that she did not have any of the symptoms that she stated in the PIP 2 form. Also stating that I was only a point of contact and could not speak on her behalf.

I sent in 8 pages of illnesses and pending diagnoses for probable surgery.

Friday ( Thursday night to Friday morning ) as an unpaid carer I had to take her to A & E we went in at midnight after a bad day/night and had to ring an out-of-hours Doctor who told her to go straight away. She was suffering from an onset of a Stroke. The left side of her face had dropped, and her speech was slurred, having seen this before (in my own family) made the call for her. Since Friday the 24th of May, we have been in A & E, straight in within an hour, 2 CT Scans on the head and chest, then a further dye scan on the head, The Diagnosis, was "mild" stroke, brain bleed causing blurred vision and Head Aches, pressure behind the eyes required ANOTHER DRAINING OF THE SPINAL COLUMN. Capitas Diagnosis There has been no input from the claimant, as to any of the conditions stated in the PIP form and in my opinion does not require the level of support she is receiving, Disability Analyst/Physio Therapist/Adult Nurse.

15 Hours in A & E, before they stated that she required another Drain and that her blood pressure was excessively high and asked what was her normal pressure as the machine must be acting up. They could not find anyone to give the Lumbar punch needle and by 9:30 pm decided to bring in a registrar. That doctor and another doctor spent 2 1/2 hours numbing her back and trying to get a needle long enough to enter the column. They were so tired that they had to stop for 1/2 hour to have something to eat and allow some of the anesthetic to wear off before trying again.

They came back 2 hours later and decided to put her in an anti-room for the doctors to have a look on the morning shift, they decided to put her on a "C" list, which is an emergency list, and as soon as the doctor had finished the surgery he was doing to get her into theatre. On his review, he decided she needed to be put into a ward, where she has been ever since, waiting for the right doctor to perform the STENT ON HER BRAIN AND ALSO A CATHETA FROM THE BRAIN DOWN TO THE STOMACH.

it is now 18:20 27th of May 2024, and guess where she had an appointment tomorrow with? YEAP, the neurologist, the ophthalmic surgeon, and another surgeon at Clinic 17, who, over the last 14 months, have been delaying this and trying to stop Brain Bleeds with Tablets.

But of course, I know nothing, I'm only one of THOUSANDS WHO ARE UNPAID CARERS, who it seems can send in Medical Information but cannot speak on her behalf when it comes to Suicidal actions,self-harming, and get the care and attention she needed to be sectioned last year 3 times, by me. They are coming to collect the car on the 4th of July 2024 because they say she is only entitled to standard-rate care and no mobility.

THIS IS MY DAUGHTER Yet people wonder why I am so annoyed over these assessments. AND NO DISABILITY MP IN PARLIAMENT TO RAISE THIS AND OTHER CONCERNS OVER THE ASSESSMENT SYSTEM.

onebigvoice

When looking at the new Green Paper and what is intended for the system of benefits being paid to the Disabled and to long-term sick people to start, and the deductions of points that will now make it harder to score enough points to qualify, I have this to say:

You are being assessed by a Professional who is registered on a Medical Register with the Medical Board. It may not be the same type of Doctor or Nurse that you see, as they will try to align the person with the appropriate assessor.

Since its a "pool" they may not have an exact match since you may see more than one doctor, is a statement we all see, and will be referenced in "how I made my decision"

What you DON'T UNDERSTAND:

IS THE ID ON THE BOTTOM of the report and signed? With the latest assessments made I can now state that it is trying to happen, BUT the Decision Maker is still, and does, overrule the decision. They can decide without Medical knowledge to remove financial help and only pay Standard Rate care and nothing else? As it took 24 months to get it put on? I had an MR before now need another? NO, YOU DON'T I am doing something that I should have done (and used to do) I am now asking the Medical Board to look at the REPORT WRITTEN BY CAPITA, as I am continually told that they are medically qualified to look and make sense of the Medical Information sent in by the claimant where as the Decision Maker has not.

If they are Medically Qualified, why is this report not entered into the claimants HISTORY, since this states it is, and is used to decide what you can do and is not based on your illnesses but what you can do so they can get you back into work. So if I see a neurologist and am also seeing Mind because of Mental issues and the Assessor says he saw nothing that would suggest any of the problems listed, it becomes a medical assessment of needs.

I am asking and sending 5 reports written by Capita with the names of the assessor who completed those reports since 5 claimants have now reduced or removed benefits based on them, also asking the Medical Board to look at the report as to their content, whether they follow the Charters set for the NHS, and whether they were legal to use? I already know the answer, as my lot, are still in the Hospital, since Friday, Lunchtime with Mild stroke and brain bleeding all shown in her medical history yet Capita's report says different. PIP not only reduced the claim to Standard Care only but is collecting the car on the 4th of July 2024?
How are we being assessed? And where is the assistance when you need it most? It comes from the thousands of UNPAID CARERS AND FAMILY MEMBERS, who support 24/7.

SEND EVERY REPORT COMPLETED BY CAPITA, MAXIMUS, CONCENTRIX, AND ATOS TO THE MEDICAL BOARD IF YOU WANT TO GET THINGS DONE, you also need to send EVERY REPORT TO YOUR MP THEN THEY CAN'T SAY THEY WERE NOT INVOLVED IN THE ASSESSMENT PROCESS. OR THEIR CONSTITUENTS WITH THE UP AND COMING ELECTIONS.

Albus_Scope

Hi @onebigvoice I understand this is something you feel very passionately about as it's so close to home for you. But I can't recommend sending everything to your MP/medical board, this will just add extra stress to them and will end up causing more hard than good in the long run.

Yes, most assessors are medically trained to some extent, but this is usually a nurse, or a physio and are under no obligation to record things on your medical record as they are privately hired and it seems to be very much a case of luck of the draw who you'll be assessed by.

WhatThe

OBV, I can't listen online, only read.

You said - You are being assessed by a Professional who is registered on a Medical Register with the Medical Board.

BUT the assessors are just health professionals and not medically qualified to override our diagnoses or our NHS data. Nor do they.

The British Medical Association (BMA) only represents doctors and medical students but have expressed concerns about DWP health assessments for their employees and the general public. They will only know an assessor if s/he is registered with them.

I agree with Albus that less is more when submitting a letter if you want it read in full. I can't always read all your posts because you write prolifically but I'm very glad you do. What a shocking tale you've described above 😣