Please can someone write to me

Agnia

please can someone kindly write to me who is on wheelchair or use mobility scooter how to cope
im feeling very lonely 
please every is welcome to write here to talk even about a different subject 
thank you 

surfygoose

Hi Agnia,
how have things been going for you? Have you had any progress with social services about any help they can give?
in terms of being in a wheelchair or mobility scooter perhaps still look if there are any clubs around where people can meet up for coffee and a chat. I know not everywhere is accessible as would be ideal, but lots of cafes are reasonably accessible now.
Sorry to hear life is still such a struggle. I no old things improve for you.

Albus_Scope

Just echoing Surfygooses comment here, how're things progressing @Agnia? You know you're always welcome to join in the chat on the community.  

sam3169Q

Hi my name is Ashley I am 24 / 7 wellchair user it's harder some days to get out bed but I do I use my electric chair for lot of things keep your chin up 

WhatThe

Agnia, you are the first Scope member I cared enough to write to when I joined...lots of others do too! 

I'm so glad to know you can get outdoors now! 
A year ago you were immobilised and fighting for your benefits. You have made a lot of progress in that time. 

Are you sleeping better at the moment? I read about your bad reaction to one prescription.

Any experienced wheelchair users or mobility scooter riders reading this???

Agnia

Thank you very very much for writing here 

Agnia

Thank you to everyone who wrote here 

ber

Nice to see there's a few comments. There's nothing worse than feeling alone.
I must admit this year has been the worst yet ever life has been harsh these last 12mnths.
Everyone needs a virtual and actual 🤗 hug sometimes. 

Agnia

Thank you very much for writing here 
the last 3 years have been the worst of my life 
my life and my health will never return to its previous condition 

Agnia

Hi WhatThe , thank you very much for all your support and for writing here 
im still not able to go outside it’s one year now im here in this room

Hi Ashley , thank you very much for writing here  

kind regards 

WhatThe

Oh did I misunderstand? I'm sorry you're still unable to get outdoors...   
Do you have a wheelchair to use indoors now or just thinking about trying one?

You sound a little bit better. We have more resilience than we think. 

 

sam3169Q

Angela your very  welcome I spent 2 years in bed so I understand  we're u are  coming from I got OT and care manager they help get me out of bed and to use the chairs  if u are on high mobility you can pay for chair of electric chair witch would get u out the house 😁😁😁😁😁

Shaheen585

@Agnia Hi how's it going Agnia hope you're well?

Agnia

Hi Shaheen , thank you for writing to me , im not feeling well

Nikkita

Hi Agnia,

I'm new here and I too am confined to a wheel chair. I go out maybe twice a year. I get terribly lonely at times. I do have a wonderful husband who does so much for me. I've noticed in the past few years that our conversations are becoming less and less. He's 75 I'm 73 and we have been married for 50 years. I think so much of his time is taken up with caring for me, he has forgotten that I'm still a person who needs to socialise.

Are you able to get out and about Agnia? Maybe a mobility scooter would be so good for you, just to be independent, go to the shops, maybe have a coffee and chat to a new person. Years ago, I joined an art class, is there anything like that where you live? Even 1 special morning or afternoon in the company of other people can work wonders for you. It did for me, I met several disabled and able people. We all had something in common, we were all lousy at art! 🤣

I went riding for the disabled, joined a book club, and had a close neighbour to chat to. I gave all that up when we moved to the North Norfolk coast, it had always been our dream to live here. We've been here for 14 years now and I still haven't seen the sea.

I understand your loneliness, I feel it so desperately, yet I'm like you, what can I do about it.

Coming here has already helped me agnia. If you ever fancy a chat, I would be happy to start a friendship.

You never know, you might be lousy at art too.

😁{{gentle hug}} Nikki

Albus_Scope

Heya @Nikkita thanks for sharing, it can really help people feel less alone when we share our tales. I'm glad you've been finding ways to connect, I know how hard it can be, but there are befriending networks out there that can help. :)

Nikkita

Albus-Scope,

even you responding to me helps enormously. I've felt almost invisible for some years now.

Have you shared your 'story' on here? I'd like to get to know more about you and what struggles you've have and how you deal with them. I think sharing pieces of us help not only other people but also ourselves. I know only too well that sometimes there are things we fear to share. I think it was Susan Jenners who wrote "feel the fear and do it anyway" her book was a life saver for me. Have you had such an experience?

{{ gentle hugs}} Nikkita.

judie

To anyone feeling lonely, please know you are not on your own. Many of us understand and share your feelings of despair. We may not be with you physically but you are in our thoughts x

Albus_Scope

Thanks @Nikkita I'm glad I could help. :)

I shared my story a year ago when I had the great honour of getting this job, but the short story is I'm a disabled guy, who loves helping people. 😁

And those are very true words @judie we're all here to support each other, the community is always on the other end of the screen. ❤️

Nikkita

The problem with typing whilst laying down is that you can't see what you've written. (Happily I'm propped up by pillows now) I meant to say Susan Jeffers, not Susan Jenners. wrote the book entitled 'Feel the fear and do it anyway.' it really did help to turn my life around. Has anyone else had something that made their lives easier?