Pip without any diagnosis — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Pip without any diagnosis

Options
milla10
milla10 Community member Posts: 11 Listener
Hi, I was looking for a bit of advice, can you get pip without any diagnosis? I have been unwell since march last year with chronic body pain and a lot of other symptoms, I’ve seen a few specialists, had a lot of blood tests to rule out vitamin deficiency, spinal mri was normal but I am now being referred to neurologist for brain mri as I have many symptoms of ms, I also have every symptom of fibromyalgia but no diagnosis of anything yet, this has been a very long and stressful year for me and I’m no further on, it has made me extremely depressed and anxious and I have had to give up work due to my limited mobility, I was awarded lcwra in February, I got my first payment this month, now I’m unable to work I wanted to apply for pip but I’m worried as I have no diagnosis and I’m thinking have I even got a chance in being awarded anything? Is it worth trying for?

Comments

  • chiarieds
    chiarieds Community member Posts: 16,103 Disability Gamechanger
    edited March 21
    Options
    Please don't worry about considering PIP without a diagnosis - PIP isn't about any diagnosis, nor a lack of one, rather how the problems you have cause you have to have difficulty with 'reliably' being able to do/attempt any of the PIP descriptors, which please see here:

    https://www.cambridgeshire.gov.uk/asset-library/personal-independence-payment-descriptors-and-scores-april-2023.pdf

    PIP is about how you're affected 50% of the time, & if the difficulties you face are now expected to last a further 9 months.
    You can read about it all in more detail here:

    https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria

    I'm sorry you've had to give up work, & understand how stressful this will have been for you, but, yes, PIP may well be worth applying for.


  • woodbine
    woodbine Community member Posts: 11,656 Disability Gamechanger
    Options
    It's always worth applying, PIP is awarded for care and/or mobility issues you may have not an illness or condition, have a good search of the internet about PIP and the PIP descriptors to get a better understanding PIP and LCWRA are two very different benefits.
    2024 The year of the general election...the time for change is coming 💡

  • milla10
    milla10 Community member Posts: 11 Listener
    Options
    Thank you both for your comments, I am going to give it a try, I have nothing to lose at this point
  • TheManFromLondon
    TheManFromLondon Community member Posts: 216 Pioneering
    Options
    milla10 said:
    Thank you both for your comments, I am going to give it a try, I have nothing to lose at this point
    Except your sanity during the process... 

    Seriously, yes, by all means apply, as advised PIP is not about diagnosis. Let us know how it went. Good luck.
  • milla10
    milla10 Community member Posts: 11 Listener
    Options
    milla10 said:
    Thank you both for your comments, I am going to give it a try, I have nothing to lose at this point
    Except your sanity during the process... 

    Seriously, yes, by all means apply, as advised PIP is not about diagnosis. Let us know how it went. Good luck.
    Thank you, I will
  • poppy123456
    poppy123456 Community member Posts: 54,235 Disability Gamechanger
    Options
    There's many people that claim PIP without a diagnosis. When you receive the form please make sure you include as much relevant information as possible, without telling your life story. 

    Also include a couple of real world examples of exactly what happened the last time you attempted each descriptor that applies to you. Adding detailed information such as where you were, what exactly happened, did anyone see it and what the consequences were. 

    Please have a read of the links chiarieds posted, especially the 2nd link. The more understanding you have of the descriptors, the better it will be for you. 

    If you have any additional evidence to send then please make sure you include that when returning the form. They very rarely contact anyone for any evidence. Make sure to include your name and NI number on everything you send and send copies only and keep a copy of everything for yourself. 

    You can ring to request extra time to return it and they will give an extra couple of weeks. 
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • milla10
    milla10 Community member Posts: 11 Listener
    Options

Brightness

Complete our feedback form and tell us how we can make the community better.

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.