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Self-diagnosed autistic

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sunny00
sunny00 Community member Posts: 1 Listener
Hi !
It's been a while now but after long hours of research and self-reflection, I'm pretty sure that I am autistic. I'm not sure if it's okay to self-diagnose though...?
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  • rubin16
    rubin16 Community member, Scope Member Posts: 669 Disability Gamechanger
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    Hi Welcome to the community, Its okay to self-diagnose however you will never know for 100% certainity that you may have autism without an official diagnosis. Also you won't be able to access most support available until you have a true diagnosis of autism.

    However I know a few people who class themselves as autistic and never had a diagnosis, some get by fine without officially being diagnosed and don't like the label assosiciated with it. And some others like the diagnosis as it puts their mind at rest and gives them the answers they needed. Its whatever works for you.

    If you do decide you want a diagnosis please note that there is considerable wait times for an Autism and ADHD assessments at the moment with most waiting roughly a year and up for one.

    All the best.
    I have Autism, ADHD, Schizophrenia, Gilberts Syndrome and Crohn's Disease and have knowledge in these areas.


  • Jimm_Scope
    Jimm_Scope Posts: 3,158 Scope online community team
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    Hi @sunny00, welcome to our community :) As @rubin16 explains, it's okay to self-diagnose, but you'll never really know the answer until you've had a good assessment. While things like PIP do not require a diagnosis, a lot of support out there can require an actual diagnosis and self-diagnosing won't be accepted.

    I would always recommend asking for a referral for an assessment if you are sure. Also, with the waiting lists as they are now the earlier the better.
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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  • poppy123456
    poppy123456 Community member Posts: 56,030 Disability Gamechanger
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    My daughter was diagnosed with ASD at 17/18 years old. I had to fight for 14 years to get answers. The older she became the more obvious it was and I was certain she was Autistic but I never labeled her until we were certain. 

    Some people said to me why is a diagnosis important because it doesn't change anything. Yes, they are correct, it doesn't but it gave us answers to all our questions and what if's. An answer to all those years where I was constantly told I was an over protective mother. I was even told that her school teacher knew her better than I did and that she was just a "shy little girl" 

    Having a diagnosis can also help with some support. Before she was diagnosed she had no support and as soon as she was diagnosed, that changed. Though we lost that support during the pandemic and it never returned. 


    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Colin_33
    Colin_33 Community member Posts: 6 Listener
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    Being diagnosed with any form of Autism is hard. I was diagnosed late in life as the physical symptoms   kicked in.

    Bottom line, there is hope through family / friends.


  • Jimm_Scope
    Jimm_Scope Posts: 3,158 Scope online community team
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    At @poppy123456, I actually got asked that specific question "What do you think it will change?" by a nurse when I began my ADHD assessment journey at 29. 

    I'm now nearing 31 and I have a stable job, my mental health is SO much better, my social life has improved. Most of all though, I understand myself so much more. 

    Sort of wish I could see the nurse who asked that again to let her know what it changed.
    They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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    Opinions are my own, such as mashed potato being bad.
  • Albus_Scope
    Albus_Scope Posts: 5,149 Scope online community team
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    I'm just echoing what others have said here, but it's fine to self diagnose, but getting a proper answer can really help in life.  I wasn't officially diagnosed until 2 years ago and it's been a huge help finally having a definitive answer.
    Albus (he/him)

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