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Hi, my name is Andy1964!
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Andy1964
Community member Posts: 2 Listener
I've just been diagnosed with ataxia and see a neurologist in August.i think my symptoms are low,balance and mobility issues,just succumbed to a walking cane.
Comments
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Hi @Andy1964, welcome to our community How are you feeling about your diagnosis? I know it can be a moment of mixed feelings. You finally have some sort of an answer to the issues that are being caused, but knowing that can sometimes bring up other, difficult questions.
We have a few members who also have ataxia, so you aren't alone here.
I understand that it feels like you've "succumbed" to a walking cane. However, if that is what helps you get around why is that such a bad thing? It's not a bad thing from my point of view. I take medication to help control my crohns disease so I can have more independence. It doesn't mean I've succumbed to taking the medication to me.
I don't know if that might help you see it in another light. I understand it can feel negative, but it shouldn't need to be.They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
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Opinions are my own, such as mashed potato being bad. -
Maybe succumbed is the wrong term,but I have had the symptoms for 2 years,2months ago I started using a walking cane my confidence has shot up,plus people see the cane and don't look at me as if I'm drunk.
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Ah, I see. You meant it jokingly @Andy1964 ? It can sometimes be hard to recognise the tone with just text sorry! And it's not uncommon for people to "feel like a failure" if they have to use an aid, which they shouldn't have to feel that way.
I'm glad your confidence has really gone up, I imagine with the cane you're able to get around much more easily. Anywhere particularly enjoyable you've been going? Or just for some nice walks now and then There's a nice heath park not far from me I like to go to for fresh air and greenery.They/Them, however they are no wrong pronouns with me so whatever you feel most comfortable with
Online Community Specialist
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Opinions are my own, such as mashed potato being bad.
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