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Worried about how my assessment went.

LeeCVT

I had my assessment a few weeks back and I'm still waiting to hear but there was something that concerns me.

I had a brain injury resulting from a cvst/stroke. My speech is affected and this usually happens now when my heart rate and BP rises. I warned them at beginning of interview that I might not be able to answer as this happens quite regularly. However, during the 1 hour and 30 mins of the assessment it did not happen at all which is very unusual for me. Will this look like I'm making it up? Obviously it's been documented at time of my hospital admission but I know they don't always take the evidence as gospel.. Just a bit worried about it.

Thank you

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Rosie_Scope

Hi @LeeCVT, welcome to the community.

It's so hard to tell whether they'll take anything from it or not. It'll also depend on the evidence and how much they can gather about your conditions from what you wrote on the forms, so it's not always all based on the assessment itself. Agonising as it is, it might just be a case of trying to keep your mind off it and waiting to see what happens next. There's not much you can change now, which is frustrating, but hopefully it'll all be okay.

Is this your first PIP assessment? I'll be keeping my fingers crossed that you get the result you're hoping for!

LeeCVT

Yep it's my first time applying although I should have a long time ago I just tried to get on with things. Initially had a clot over a year ago and it gradually got worse to where they rushed me in back in April thinking this could be it. There's no way I can work now, the pain is the worst thing I've ever experienced and I have major memory loss/cognative impairment.

I was a software engineer and I can't remember how to code, and even worse I can't remember my son being born. It's heart breaking

Rosie_Scope

Sorry you're in so much pain @LeeCVT, that must be really tough along with everything you've had to deal with. Are you getting any support to cope with the mental health impact of it all?

LeeCVT

Not yet, it's all turned into 'multidisciplinary chaos' at hospital so who knows when or if I will get support. Half the trouble is trying to retain what I'm told. If my partner wasn't in room with me when nuro Dr's gave the diagnosis I wouldn't have known what was wrong at all. My 'things to remember' diary has turned into something I dread reading because it's like getting the diagnosis fresh every day. I'm aware there is something I need to remember but it's like it is cut out of my head and nothing I do will let me remember it.

After reading forums the last few days I did manage to request my report so at least I have an idea if I have any chance of getting this. I can't see any reason why not, the consultant said I should claim as I'd more than qualify. Fingers crossed. Thanks everyone for advice, very much appreciated.

Rosie_Scope

That sounds really difficult to cope with @LeeCVT. I hope they're able to offer you some support soon. One thing you might like to look into is Disability Plus, they do counselling specifically for disabled adults so it could be worth getting in touch with them to see if they'd be able to offer you any support.

Keeping everything crossed that it's a positive result for you on your PIP claim! Keep us updated if you're feeling up to it 😊

kitkat23

Hope you hear soon @LeeCVT ....don't know where you are but my DD had her assessment on 12th June and today ( 12 days later) got a text to say PIP has been awarded and letter to follow

kitkat23

Meant to say my DD lives in NW

LeeCVT

I'm not sure if this will take away from my claim.. I had numerous medical investigations by movement specialists, I had a letter with my results yesterday saying there were abnormal changes detected in my Eeg but the latest MRIs don't really support the EEG results so they don't think I have parkinsons or any other movement disorder. So I'm back to being seen by normal neurology and trying to pinpoint where the damage has happened . My condition hasn't improved and to be honest I don't think it ever will. But because I don't have parkinsons, something I never ever used when filling in forms, will this affect my claim?

poppy123456

https://forum.scope.org.uk/discussion/comment/881923#Comment_881923

PIP isn't about a diagnosis. What they look at is how your conditions affect you. You said your condition hasn't changed and you never mentioned Parkinson's to them anyway, therefore nothing changes.

LeeCVT

Thanks Poppy. Hopefully my copy of the report will arrive today or tomorrow. I'd rather just know one way or another now.

LeeCVT

So had my assessment report back but it's one of those days where I just can't understand anything after having a hell of a night where I came close to going back to hospital . Have no way to interpret it currently, I see something about condition is not likely to change for a year and half but my vision is so bad today I can't even see recommendations. 26 pages of report, is this normal?

LeeCVT

Looks like it went the way doctors said it should, had my other half look at it and seems if they go with the report it's higher rates for both. Bit shocked because wasn't expecting higher rate but won't argue I guess.

Jimm_Alumni

Great to hear @LeeCVT ! Always amazing to hear good outcomes

Rosie_Scope

Sorry to hear you're not feeling so well @LeeCVT, I hope you're feeling a little more like yourself soon. Sounds positive about your report though, fingers crossed they go with along with it! Keep us posted with how you get on 😊