Goodpastures Syndrome

WaterWytch
WaterWytch Online Community Member Posts: 12 Connected

Hi all

New here and was wondering if anyone else here had a diagnosis of of Goodpastures Syndrome? I was diagnosed a few months ago after being ill and ending up in a coma in hospital. I know very little about the syndrome and neither do the consultants I am under currently ( respiratory, neurology, hematology) Apparently it's a 1 in 1 million autoimmune syndrome which I didn't know I carried the gene for and I got incredibly lucky in the hospital due to one of the doctors seeing a case of it 15 years ago. It meant that I got the right treatment early enough to not end up losing my kidney function etc.

If anyone has any info it would be appreciated as I don't know what to expect going forward. Any more info I can provide, please let me know.

Thanks for reading

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