Had a Liver Transplant PIP review

trixie81
trixie81 Community member Posts: 4 Listener
in PIP, DLA, and AA

Hiya

I just got my pip review through. Im terrified and don't know where to start. I was awarded the enhanced level on both 3 years ago.

In March I had a liver transplant. Should I include all my hospital admissions and all my abdominal drains and other treatments, like my endoscopies etc BEFORE I had the transplant in March or should I just out in stuff from recently like after the transplant? The endoscopies caused my esophagus to narrow causing eating a struggle coz food gets trapped ets. Theres info on there about my hernia that is the size of a grapefruit. Should I only include RECENT info though? Do they care what happened last year or the year before?

I live absolutely alone. I don't have visitors even. When it says prompt? Well how can I've prompt if nobody is here?? It kinda makes answering all the questions impossible for single , alone people!!

I was diagnosed with severe Agoraphobia and GAD in June. I know to add as much as I can about that. Nowhere does it specifically say , 'this will go on longer than 9 months' though???!

I'm here mainly because I have zero help with this. My GP refused to write a letter, the secretary seemed joyful when she told me, ' they don't do that'..

I've no family and my Agoraphobia has caused my life to end up with just me. I literally have nobody to help me.

The liver nurse wrote a letter but it says Samantha will be recovered from the transplant in about a year. Useless, when she asked me what she should write. I had no clue. Im in this way over my head.

Any help or advice would be greatly appreciated.

Even if someone can describe to me what the word , ' PROMPT' means in PIP and how to answer if you have nobody to prompt you!!

Thanks for reading x

Samantha

Comments

  • Albus_Scope
    Albus_Scope Posts: 6,790 Online Community Coordinator

    Hey there @trixie81 I'm so sorry to hear this is causing you so much stress. I know first hand PIP isnt the easiest thing to deal with.
    It's usually best to treat the review like a whole new application and it's less about any diagnosis and more about how your illness affects you daily. So I'd not worry too much about including mountains of paperwork as that can sometimes be detrimental. As long as you can show which descriptors you should get, with real life scenarios to back your answers up, you should be ok. Also remember if you cannot do something safely, repeatedly, or in a reasonable time, you are counted as being unable to do that thing. It's also good to know that prompts could be alarms on your phone etc.
    And most importantly, we're all here for support if you need us. Or even just for a bit of a chinwag. 😊

  • trixie81
    trixie81 Community member Posts: 4 Listener

    Thank you. Thats actually helped alot. I didn't know my alarm on my phone was an aid!! I guess it could be my prompter too! Ty for your reply.

  • poppy123456
    poppy123456 Community member Posts: 59,054 Championing

    PIP is awarded based on the help and support you need, regardless of whether you receive the help. Many people live alone and claim without any issues. There's a guide here that may help.

    https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/pip-changes-and-reviews/help-with-your-pip-review-form/

    The most important thing is to treat it as a new claim, even if there's been no changes. Please do not just write no change with no other information.

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