Given up on discussing my disability.

Jamie78

Hi all, I have been living with cervical myleopathy symptoms and cfs syndrome for 4 years. I am unable to work because I'm having to rest though out the day. Im in chronic pain, really dizzy, exhausted, weak and heavy limbs ect ect. When I'm feeling up to it I talk to neighbours, friends and I am OK for an hour or so. I have to constantly explain why I can't work and what I'm doing with my life. They always say I look OK and I would be better off working and maybe it's all in my head. I have given up trying to talk with them, and not being believed is starting to make me paranoid. Its a nightmare having to be in pain and not have a life, but the worst thing is people thinking I'm a lazy unemployed benifits cheat.

ricky1040

Jamie. No matter what anyone thinks. You live in your body and you know how your feeling. So you know the answer. That's why this place is great it's full of people in similar positions. And for people who don't have similar positions I can understand that it's hard for them to understand.

ricky1040

Iv been having similar issues. But I think my close loved ones now understand. But it took time to get to that place. Chronic pain is no joke.

vikki66

Hi @Jamie78

Sorry to hear you’ve been made to feel ####. Try your best to take no notice of such ignorance. You don’t need to justify yourself to anybody, and there’s really no need for people to come out with that kind of invalidating ####ocks. Being exposed to that kind of negativity will drain you, and make you feel worse. Could you maybe avoid some of these people for a wee while so they don’t affect your mental health.

Wishing you all the best

Albus_Scope

Hey @Jamie78 I'm so sorry to hear this. It can be so difficult having an invisible illness. People only ever see you when you're feeling up to seeing people, which I know first hand can be very rare.
I expect they're trying to support you by saying you'll feel better if you get back into work, but I understand how hurtful it can be.