Hi, my name is judyokeefe!
I am a parent of my daughter who had JME and poor mental health as a result of her JME. I am so sad to say my daughter had desperately been failed by the NHS and as a result took her own like after 6 years of being diagnosed with JME. We want justice but most of all do not what happened to our family happen to anyone else. All medical publications say JME requires a holistic mental health plan al with an epilepsy plan. I believe our families are being failed resulting in avoidable sucides. Is there anyone out there with a similar experience or has a child or young adult your worried about. We need change to save them.
Sincere and heartfelt message. Judy
Comments
-
I'm so sorry for your loss, you and your family deserve justice. ❤
0 -
Hi @judyokeefe welcome to the forum I'm so sorry about your daughter and I hope you all get the answers you want and raising the awareness
0
Categories
- All Categories
- 14.1K Start here and say hello!
- 6.8K Coffee lounge
- 63 Games den
- 1.6K People power
- 91 Community noticeboard
- 21.8K Talk about life
- 5K Everyday life
- 52 Current affairs
- 2.2K Families and carers
- 819 Education and skills
- 1.8K Work
- 432 Money and bills
- 3.3K Housing and independent living
- 882 Transport and travel
- 651 Relationships
- 60 Sex and intimacy
- 1.3K Mental health and wellbeing
- 2.3K Talk about your impairment
- 845 Rare, invisible, and undiagnosed conditions
- 892 Neurological impairments and pain
- 1.9K Cerebral Palsy Network
- 1.1K Autism and neurodiversity
- 35.4K Talk about your benefits
- 5.6K Employment and Support Allowance (ESA)
- 18.4K PIP, DLA, and AA
- 6.5K Universal Credit (UC)
- 5K Benefits and income