Help needed

suzymaltwood2612

so I’ve been having bad blood clots since beginning of the year they put me on thinners then when the thinners finish clots keep coming back with pain swelling numb feet it’s horrific and as referred to thrombosis they didn’t even see me just sent a letter to gp saying they couldn’t help I needed the go to vascular referral done to vascular they also sent back to gp while all the time I’m getting worse I’ve complained to pals it’s taking me weeks and weeks to get a reply does anyone know what my next step would be please

Kita

I would either see another doctor in the surgery you go to or you go directly to A&E if your not getting any luck. I ended up going to A&E for something that doctors kept messing me about with, was my only option.

Neyah

You have to stay on the blood thinners until you see specialist. Don't keep stopping and starting….

Julessarahthompson

Look for a vascular surgeon that's accepts right to choose patients and then ask your gp for a referral to them through right to choose

suzymaltwood2612

I’ve not seen a specialist it’s a n e that gave me the thinners they only give them for a set period of time I don’t have a choice but to stop them if I don’t have them it’s a proper struggle

suzymaltwood2612

I can only stay on the thinners for the fixed period they give them to you for hun x

paddy1

Sounds like you need to request your GP to refer you to a specialist to NHS to get to bottom of your situation ,they have got you on the GP merry go round ,its a stalling tacktic ,they have to refer you if you request it

suzymaltwood2612

https://forum.scope.org.uk/discussion/comment/919118#Comment_919118

yes been referred twice now both times been sent back to gp

Bluebell21

Hi @suzymaltwood2612 Can you GP not give you some more blood thinners? If your clots keep coming back you need to be on them longer. I cannot believe you are being treated so badly. Please take care of yourself.

paddy1

You posted you had not see a specialist ??.were you refered and were you examined , if not you need to know why not or are you on a

waiting list to see a specialist

figraspberry41

Sorry to read again someone is struggling to obtain care through NHS! A previous post is correct you should not stop taking the blood thinners. The Hospital (or source of origin) are usually only permitted to supply a minimal supply of medication (often only two weeks occasionally a month's supply) then it is up to your GP to continue to supply the medication until you have seen a Consultant and they advise stopping, which would be unusual.

If you are still on this merry go round, contact the Patient Advise Liaison Team via your Hospital (every Hospital should have one or know how to access them).

Hope this is helpful.

suzymaltwood2612

https://forum.scope.org.uk/discussion/comment/919127#Comment_919127

@Bluebell21 gp won’t give thinners has to be a specialist is what they saying to me zx

suzymaltwood2612

https://forum.scope.org.uk/discussion/comment/919128#Comment_919128

@paddy1 I have been referred to 2 specialist first one said they didn’t need to see I needed to see vascular so gp done second referral to vascular they are now saying they can’t see me I’ve not actually had a specialist appointment hence me complaining to pals but now pals isn’t even replying to my emails

suzymaltwood2612

https://forum.scope.org.uk/discussion/comment/919137#Comment_919137

@figraspberry41 hi the hospital gave me thinners with enough time to get a specialist appointment I’ve been referred 2 times to different specialist neither have seen me it isn’t that I’ve stopped the thinners it’s only for a set time I have only 5 days left of the thinners now

suzymaltwood2612

https://forum.scope.org.uk/discussion/comment/919160#Comment_919160

@figraspberry41 ive already been complaining to pals since July they ain’t even replying to my emails I need to find out what the next step is if they ain’t helping me

Jimm_Alumni

I'm also baffled why the GP isn't keeping you on blood thinners if you keep getting clots each time you stop @suzymaltwood2612. Is there another condition or reason for them to not want to keep you on blood thinners?

Julessarahthompson

You can get thinners from your gp, I was put on them by my gp. [Removed by moderator - medical advice]

suzymaltwood2612

https://forum.scope.org.uk/discussion/comment/919166#Comment_919166

@Jimm_Scope hey no there is no reason not to keep me on them the gp has said I may need to go on n them permanently but without seeing a specialist he can’t prescribe them I’ve been on them on and off since Feb which means a trip to a n e each time

paddy1

This is a shocking waste of time and resoures of the AE by your GP ,are you having a face to face appointment with your GP or are you being fob off with phone appoitments ,? i would insist on a face appoi tment and take somone with you to help you get the information why they are not treating you with the medication you clear.y need ,i have found that having my daughter with me has alway proven more productive when dealing with my GP face to face

Pandapaws

I’m so sorry that you’re having such a battle to be seen. I’m on blood thinners for life, I’ve had 3 blood clots. Have you had your bloods taken to Check your levels? As that will show your blood cloting levels would be higher than normal and will then need to go and have a scan to confirm ?

I know when I had my first blood clots years ago I was only on blood thinners for 6 months. Then a couple of months after coming off them I got another one so was then on them again long term.

letitbe

this is unbelievable, clots are really serious ( I’ve had pulmonary embolisms twice now and was hospitalised last year ) I’m on life long apixiban now . You really need to push to see a specialist asap and tell your GP you need more thinners until you see the specialist. If any pain or shortness of breath etc go to A & E asap and tell them you need a d-dimer blood test .