Hi, my name is Rebecca_Taylor!
Hi everyone! I’m Rebecca, a 22-year-old from Northern Ireland with right hemiplegia cerebral palsy. I’m here to connect with others in the CP community, share my experiences, and learn from yours. I’m also working on a Master of Research (MRes) and PhD, focusing on CP and pain measurement. I look forward to hearing your stories and supporting each other
Comments
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Heya @Rebecca_Taylor and welcome to the community!
Thanks for telling us a bit about yourself, sounds like you're certainly keeping busy with that PhD, amazing stuff!
We have the lovely @Richard_Scope who heads up our CP Network, so he'd be the person to chat to here. 😁1 -
Good to meet you. Your research sounds very interesting. What's the CP landscape like in Northern Ireland?
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Hi Richard!
When I was younger I never met anybody else with CP, so I was never involved with the research/community aspect of it. However, I know now the support for CP in a community sense isn’t the biggest.
That is why I want to do CP research , especially from the pain perspective. I love to hear everyone else’s experiences of it and to share their voice, so more people are aware, and more can be done!
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My background is very similar. I didn't know many, if any people like me. Which in a very convoluted way brought me to my current job at Scope.
Thankfully, things are improving from a research and community point of view. I've just got back from the annual Cerebral Palsy conference in Glasgow. There are many peer-to-peer groups, including this one of course!
Also in the CP Network category, you'll see some of the projects that I have been lucky enough to have been involved with.
I would love to know your thoughts on some of those research projects. 😊
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I’m sorry to hear you had similar experiences, but I’m glad you were able to find a career that helps you to embrace that part of you.
Glasgow, what a city! That sounds like a conference I would love to go to one day.
Yes, I do agree with your thought on the research. However I believe there is still a lot to be done, especially for the adult population. I’m happy that people like you are collaborating with research to provide vital insight of CP.0
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