Hi, my name is Rebecca_Taylor!

Rebecca_Taylor
Rebecca_Taylor Online Community Member Posts: 4 Listener
in Start here and say hello!

Hi everyone! I’m Rebecca, a 22-year-old from Northern Ireland with right hemiplegia cerebral palsy. I’m here to connect with others in the CP community, share my experiences, and learn from yours. I’m also working on a Master of Research (MRes) and PhD, focusing on CP and pain measurement. I look forward to hearing your stories and supporting each other

Comments

  • Albus_Scope
    Albus_Scope Posts: 8,327 Scope Online Community Coordinator

    Heya @Rebecca_Taylor and welcome to the community!

    Thanks for telling us a bit about yourself, sounds like you're certainly keeping busy with that PhD, amazing stuff!

    We have the lovely @Richard_Scope who heads up our CP Network, so he'd be the person to chat to here. 😁

  • Richard_Scope
    Richard_Scope Posts: 3,693 Cerebral Palsy Network

    Hi @Rebecca_Taylor

    Good to meet you. Your research sounds very interesting. What's the CP landscape like in Northern Ireland?

  • Rebecca_Taylor
    Rebecca_Taylor Online Community Member Posts: 4 Listener

    Hi Richard!

    When I was younger I never met anybody else with CP, so I was never involved with the research/community aspect of it. However, I know now the support for CP in a community sense isn’t the biggest.

    That is why I want to do CP research , especially from the pain perspective. I love to hear everyone else’s experiences of it and to share their voice, so more people are aware, and more can be done!

  • Richard_Scope
    Richard_Scope Posts: 3,693 Cerebral Palsy Network

    My background is very similar. I didn't know many, if any people like me. Which in a very convoluted way brought me to my current job at Scope.

    Thankfully, things are improving from a research and community point of view. I've just got back from the annual Cerebral Palsy conference in Glasgow. There are many peer-to-peer groups, including this one of course!

    Also in the CP Network category, you'll see some of the projects that I have been lucky enough to have been involved with.

    I would love to know your thoughts on some of those research projects. 😊

  • Rebecca_Taylor
    Rebecca_Taylor Online Community Member Posts: 4 Listener

    I’m sorry to hear you had similar experiences, but I’m glad you were able to find a career that helps you to embrace that part of you.

    Glasgow, what a city! That sounds like a conference I would love to go to one day.


    Yes, I do agree with your thought on the research. However I believe there is still a lot to be done, especially for the adult population. I’m happy that people like you are collaborating with research to provide vital insight of CP.

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