What could / should PIP be paying for ?
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Well today I spent just under £60 on low carb pasta from the US (I am diabetic). I can't get it in this country. Whilst I know I could just go without eating pasta, I rely on hubby to do the cooking and I am trying not to make things too complicated for him.
We use PIP to pay for a cleaner once a week and if I could find someone, it would also pay for a gardener. We've just paid for someone to do some painting for us too. Vouchers would unlikely cover any of this.0 -
Onlymeagain…also diabetic here …..I get my diet pasta (low carb ) from uk…currently £0.87 for 200g….but im not sure im allowed to post a link…search "diet pasta glucomannan uk" and you should get it.
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I try to avoid the states due to the postage.
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@onlymeagain, low carbing is more expensive, it's keeping me in diabetic remission so worth it. I don't like the konjac products, but I have black bean or edamame spaghetti/noodles every now & then. Used to be sold in Aldi, but Holland & Barrett have 200g for £2.59. For a third of the box it's about 10g carbs & it is quite enjoyable.
Living alone, I have similar to others that are solo. Couldn't afford to fuel a car, have a powerchair, charging, servicing, tyres & repair is enough though & thankfully have a bus pass & the buses are plentiful around me, especially to the hospital. I used to be a pretty handy DIYer, a thing of the past, frustratingly, that is something I have to pay for now.
Then, depending on our disabilities, there's all the disabled stuff that's needed, might not have to pay tax on it, but a lot is overpriced anyway. Not always bought under the same roof.
Vouchers would never work, it was a ridiculous idea from people that didn't have a clue.
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I don't mind the konjac rice but wasn't too keen on the pasta. I've tried the black bean and edamame ones and they are okay but I also have severe IBS and find them all high in fibre which leads to other issues ….
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Yeah. I wouldn't normally use overseas. It said free delivery for over £30, but I still got charged. Apparently it's only if using a particular shipping company and they choose the company who ships the order! They've given me some vouchers for next time which they claim are more than what I paid in shipping - but someone doesn't appear to be very good at conversion.
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That's a pain about the IBS, not good. Odd how our bodies tick, I had really bad IBS, but low carb thankfully put paid to it, as well as gluten intolerance.
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This thread just shows how all our lives are different and PIP vouchers won't work.
Saying that the question is about cooking food, not where you buy it from. I can't see them giving a voucher to employ a carer to come in and cook it though?
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So many of the autism services in my area got cut years ago, and even the ones that are still there don't really help me because they're tailored to things like personal care, which I don't need.
My problem is that intellectually, academically, theoretically, I perform very well. In all practical, logistical, navigational senses I perform very poorly. People judge me often on my 'mask' and can't understand why I can do academic things but not basic things. Although that's kind of how autism works sometimes, which they would know if they actually understood executive function and related.
Really I need someone who can support me with practical, logistical things like cooking, laundry, navigation, etc. At the same time, I am wary of strangers, and would not want someone outside of my family living with me, more a person who would drop in and check that I was ok or help me get from a to b.I have a job, albeit it's never a permanent one, but on my income alone I would not be able to rent a property or move out. I would need a mentor's support even if I did do that for the practical things mentioned above. I have a bus pass but our bus is horrible - I already have to be at work 1 hour early and get home an hour and a half after finishing time because of the schedule and my work schedule not matching up. That's just extra pressure on my brain which doesn't help with general functioning.
I also have to pay early morning bus fares, even though I start work at 10, because of the schedule. And that will be going up to £3/day instead of £2 at the end of the year. Week by week it adds up.0 -
Yes it would be expected that a parter would do many of these things but PIP is based on "What YOU can and can't do"
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And my opinion is that it should be based on the extra costs you have, not just the tasks they chose to define disability.
People who live together have lower costs than 2 people living separately, so I would take that into account if I was redesigning the PIP system.
But I would also put more effort into creating services to provide help in the first place, rather than arguing over the amount of money each individual gets. Money is only useful when it can be exchanged for a service.
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Rating system PIP is a mockery of people with disabilities, a perverted interpretation of the social model of disability. For example, will they come up with another necessary device or service that a disabled person will not be able to use - and this will also be described in addition to what he could not use before? And there will be an infinite number of these. It turns out that the PIP assessment was invented specifically to pay as little money as possible.
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People who live together have BIGger costs than 2 people living separately.
For example, two people produce more carbon dioxide than one, and in case of lung disease, oxygen support is needed earlier than when the person is alone. In addition, helping another person is actually doing work for free or for ridiculous money.
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Should PiP be paid on a health needs basis or financial basis?
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The government at that time wanted to save money. It was designed to do exactly that and it did. The only reason people didn't tranfer over is because they expected to make cut backs on those already on it and prevent more from claiming. Actually no different to the UC process, it's about cut backs.
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It's about how your condition effects you on a day to day basis, not what the condition (s) actually are.
Always on a health need.
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General costs such as rent, heating, lighting, cooking, fridge, TV, cleaning, gardening, etc are all around half as much as for a single person living in the same property. Even vehicle running costs are cheaper when it is used by two people.
I don't have any experience with oxygen support so can't comment on that. Is that not covered by the NHS? If there are additional costs associated with that, it is one of very few things that costs more when living together.
Helping another person that one has chosen to share their life with should be done out of kindness and compassion in my opinion. It should not be done expecting some sort of financial compensation.
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Heating cost exactly the same for 2 people as a single person.
Because it takes exactly the same energy to heat a space no matter how many people are living in it,
The same as the energy needed to run a fridge or any other Electrical appliances do not " know" how many people are watching a TV for example.
Same as gardening
Why would a garden cost less for a single person than a couple?
Also cars cost the same no matter how many people are in it
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It's generally cheaper for two to live together as opposed to two living apart.
My Aunt & Cousin live together in one household, two incomes, one energy bill including standing charges, one set of appliances to run and replace when needed etc.
My mother and I live apart, we each have to fund everything in full from one income.
If my fridge/freezer dies I am solely responsible for replacement from one income, Aunt & Cousin can split the cost from two incomes.
I pay my heating bill, Mum pays another heating bill, whereas my Aunt & Cousin share one bill for heating.
Two incomes + one set of standing charges & negligible difference in use =cheaper to live together compared to two single people living apart.
Let's not forget Council Tax, 25% discount for single households so liability for 75% from single income, whereas a two person household would each be liable for 50% from dual income.
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My PIP goes on anything that I need, bills and such and my son is my carer and he receives carers allowance and UC and does most things for me, I obviously do treat him to things as what carers receive isn't enough.
I found what @Meg24 said about her dog interesting, while I have thought about them being support regardless of being trained or not, I've never really thought about it in relation to PIP, I've been feeling bad about wanting to get another Labrador, we lost ours last year due to vet incompetence, she helped me as much as I helped her. I'm also being weary about getting another dog because I'm currently waiting for my PIP to be reviewed which I know there's a long wait for, so I really don't want to get a dog and then my PIP goes poof and I can no longer afford to keep a dog as well as our cat.. It might sound like me overthinking but I don't have mixed mental/physical health conditions and worry a lot about every day stuff.
Thanks Meg, I won't feel so bad when I do get a dog.
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