Hi, my name is nancynancy! Does anyone please have any idea what type of pillow I should use?

nancynancy
nancynancy Community Member Posts: 1 Listener
edited November 2024 in Start here and say hello

hi everyone! I’ve recently been diagnosed with chiari malformation and I’ve been using a cervical shaped pillow to sleep cause of this but have recently found this doesn’t help anyone and I seem to get headache and face pain from this:(

Does anyone please have any idea what type of pillow I should use? Thanks so much

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  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing
    edited November 2024

    Heya @nancynancy and welcome to the community. 😊

    I didnt get on with my cervical pillow at first, then I flipped it round the other way and I found the headaches went away. I guess it all depends on the cervical pillow used.

    I think the best person you could speak to is @chiarieds she is a wealth of information regarding chiari malformation. 😁

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  • Sandy_123
    Sandy_123 Scope Member Posts: 63,231 Championing

    Hi @nancynancy welcome @chiarieds will definitely be one to advise you here. But welcome to the forum

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  • chiarieds
    chiarieds Community Member Posts: 17,362 Championing

    Hi @nancynancy - sorry I just saw this as I was putting my computer off last night (thank you for the tags Albus & Sandy)

    In the USA they developed some 'Chiari' pillows with the help of neurosurgeons & Chiari 1 Malformation patients, which are still available:

    https://medpillow.com/shop/

    Unfortunately I do not have one to 'test drive' but I know of people several years ago who found them beneficial. However they may seem expensive + shipping costs from the USA.

    Cervical pillows are not really ideal for Chiari patients

    Personally I like to lie as flat as possible & have a feather & down pillow which is really soft & in which I can make a comfortable 'dent'.

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