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Hi to all. Still having Problems with my Spc Catheter

amazingblazing628

I am Still having Problems with my Spc Catheter still getting Bleeding Servre Pain very uncomfortable i have messaged hospital last night to say what's happenening.

I am not happy with the above np one is taking me seriously I don't have a hospital appointment till the 22nd of January.

I had to buy another bed because my mattress was Wet through from all the Leakings ect would I be able to claim my money back for this from somewhere or not.

I have been sent my pre op for my other operation I am not having this done till this one is sorted out.

I just don't understand how they can leave you like this it's not very nice at all.

Sparklebright628

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Comments

JF7891

https://forum.scope.org.uk/discussion/128007/hi-to-all

I only had a catheters in my ileostomy surgery both in stomach as well as down there and also stoma drainage and then only for one week. However bedding is key in such cases and being able to shift positions as well as painkiller management. I remember clearly that nurses were checking all 3 catheters every 2 hours. I am assuming you are writing from a bed at home? Could you get in contact with you local district nurses? In terms of the replacement mattress costs, they might not, however I do know from my own ileostomy aid supplier 'Bullens Healthcare', that they provide complimentary washable, textured, fitted and fully waterproof mattress protectors, but only if you directly ask them.

figraspberry41

Hi amazingblazing628,

You may have to go through the 111 telephone service to get Community Nurses to change your catheter. Unfortunately, there have been many changes since I retired from the NHS. It used to be that if you had problems with Supra pubic catheters (although not leaking unfortunately, as this was more likely to be caused by infection and protocols do not allow a change of catheter for leakage!) However, you stated that there has been bleeding and experiencing pain, which should 'qualify' for a change of catheter. Is your catheter due for a routine change? Another thought, do you have access to a local Continence Care Team? In some areas the Continence Care Team would do domiciliary (home) visits to change catheters, it might be worth a try.

The previous person suggested contacting Bullen Healthcare, who from my memory and experience are very good at supplying continence products (including spare catheters and equipment). I very much doubt that your District Nurses will refund your mattress I'm afraid.

If you think you may have an infection, you can try to reduce this by taking Cranberry juice or Lemon Barley Water, these help to reduce the sediment which reduces risk of 'blocking'.

Please do not let this prevent you from having further surgery, I'm sure it is very daunting and always very distressing when catheters leak or you experience other problems but these are mostly resolvable and it should not be a reason not to proceed with surgery that would not have been suggested unless it was considered that you might benefit from surgery.

I am sorry that you are experiencing such difficulties, it is hard to live with and I know how frustrating it is when catheters leak. I hope that you get this issue resolved quickly and can feel less anxious in yourself. Good luck!

Banarama123

https://forum.scope.org.uk/discussion/comment/966812#Comment_966812

Sorry to interact here. Couldn’t help but say something. It’s where you stated doctors only offer operations it it benefits you. Don’t know if you are familiar with the what’s happening around mesh injured women. Their operation surely didn’t benefit them. I am speaking as one of the injured. No trust in doctors at all.

figraspberry41

Hi Banarama123,

My apologies, my comments are not to offend anyone. As a matter of fact, no, I'm afraid that I am unaware of mesh injured women. My ignorance of this 'term mesh injured' is unfamiliar with me but I have been retired for sometime now and things are constantly changing. However, since, I also do not know the nature of the surgery that the person has said they are anxious about perhaps a more suitable alternative is for the individual to discuss the surgery with a GP or probably better still the Surgeon who has recommended surgery and explain the benefits and any side effects the surgery may have.

I am so sorry that you have been affected by surgery for whatever reason and can well understand your reluctance to consider surgery or 'trusting' surgeons or doctors again. May it be possible for you to consider counselling to discuss the trauma of your experience to help you move forward? Just an idea, it does not suit everyone. Again, sorry to hear that you have had obviously a very poor experience and it has affected you. I wish you well for the future.