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We want to hear from you: please tell us about your experience of the online community.

Worried worried worried.

Doglover2

My mind is constantly full of the upcoming Change from iresa to UC ,I mean every waking moment, my sleeps terrible over 40 years, so in between snippets of actual sleep i wake and it's there to the forefront of my mind, also.I dread the uc letter.Dread isn't even a strong enough word.,

My pip ends sept next year and I know I'll get the form probably a yr in advance. So that's another constant worry. Esp if I've to do the UC migration this year too.

Then I've all my health concerns, and currently going through a barage of tests for what I like to call an "Add on" problem. Consultant thinks it's a,b or c so not entirely sure.(Cant explain it all here,would take too long) But connected to my Ibs-Ibd ,Gerd, or not! So trying to find out if it is in any way connected or new.

The past 4years have been terrible for me, I know we all suffer one way or another or on many fronts.

I'd give anything to be able bodied.

I do everything I can to stay well.

But It seems hopeless in the face of adversity. The entire pressure of dealing with the benefits system floors me.

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Comments

sunnydays

Hi,

I totally get how you feel at the moment. I have recently migrated from ESA to UC and it wasn't a problem, all straight forward. I get the pip concerns, mine is due January 2026. I have stopped reading all the stuff online about reforms and everything else as it makes me a nervous wreck. It's constantly in news feeds. Try not too over think, lots of people on here have given me good advice with regards to the migration and pip too.

Hope this helps.

kitsmum

What is your concern to migrate? I migrated from Tax credits to UC and the process itself is straightforward. If you're not computer savvy then is there someone that can help with that bit.

If you are in the support group then you should be transferred to LCWRA so you write in the journal on UC that you are in the support group on ESA.

If it is any other aspect then do you have an advocate? eg Citizens advice>

With regards to PIP renewal I got help from Age UK for mine and they filled it in for me but the waiting for the response from DWP that is the worrying bit for me.

I hope you find someone to help you and that they get to the bottom of the health issues. Its really stressful having multiple conditions and not knowing what the new symptoms are caused by.

The whole benefits area is a real pressure for most people and it is so real so I empathise with you about that. Have you got any hobbies that you like that will help you to concentrate on that to dull the worry for a while?

I've said is not helpful for you then just ignore it. Hopefully between us all on here there will be something that helps

Take care

Doglover2

@kitsmum I know the criteria for moving over. I've been on the ball about it past year as far as what it entails, I think it's a combo of it hanging over my head and the pip and health concerns as a mix. I've done dla on the past and pip forms and MR too. It's just the thought of it all. I got my last pip reinstated via the MR I did myself. It's just all daunting.

Doglover2

@sunnydays I'm not new to the benefits system, very far from it, but it never fails to bring me down.

I'm so grateful for the people on here,even reading their stories helps.

Jellihead

@Doglover2

I find the best way to cope is, as someone else on here has said, not to read or watch anything that is to do with DWP, PIP, UC, ECA, until you get a letter telling you that you will need to fill in a form.

How do you know what is going to happen until it happens? Also a saying I got from my mother-in-law, "Don't let the b******s grind you down"!

hmass01

I recently went from ESA to UC & am actually better off, I was worried sick but actually best thing I ever did. So much easier dealing with everything online & if your concerned citizens advice or another local organisation can help with completing the form. You get a couple of weeks run on for existing ESA so that also gives a buffer

Doglover2

@Jellihead

I try to be up beat.

People say be positive and I try. But I feel when you are positive the "Fall" seems even greater when it comes.

Your mum inlaw is right it's good words to live by. 😆

kitsmum

@Doglover2

I totally understand that. Just know that you have lots of people on here to help with the worry.

Jellihead

@Doglover2

You are of course right, being positive does take a lot of energy, and the sense of injustice even greater when you feel you've done everything right. To help me I try Reiki Self Healing, which calms me down, taking away that sense of dread in my stomach. I also do Tai Chi specific to my needs, you can get exercises on YouTube. Normally I do this before I get out of bed in the morning alongside my exercises for my osteoarthritis. I do it without fail as I am getting older and my thinking is, if I can get a habit going, then my body might remember it when my brain doesn't. 😂

pburns1337

Some things are in your control, some things are not. Do your best with the things that are in your control. The things that are out of your control, why think* of them?

*Easier said than done. I'm always imagining catastrophes and worrying about things that haven't even happened. Dreaming up new ways to torment myself. Just thought I'd offer a way of trying to cope with the head games…