Hi to everybody just want to tell you my history if it helps anybody or if anybody has got any advice for me. I had ces in 1994 when i was 32 years old it took 3 months to learn to walk again but with severe limp which i still have. I regained 90% bowl control after 6 months . I had bladder incontience for 6 months and had to self catheterise for 7 years before i could pee again even after my consultant told me that would be impossible . This is the interesting bit the when using a catheter with a very full bladder i found out i could increase the flow by relaxing and found i was peeing out side of the catheter as well and over the next year i learnt to pee at about 50% of the normal flow rate and i have not had a bladder infection since. I still have complete numbness in my left leg and the top half of my right leg, buttocks and genitals. I need viagra for an erection which is only 60% of normal but better than nothing but no feeling. Over the last 15 years i have developed increased pain in the toes on my left foot which is aways worst at night sometimes i don't sleep for 3 days straight. I am surviving on 3600mg of gabapentin and a box of codeine every day. Nothing seems to help i am even considering amputation but i am being told that may not stop the pain but i have to try something because i can't live another 15 years like this. If anybody has ideas as i am at my wits end .
